Hereditary Disease Foundation
Hereditary Disease Foundation
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About this organization
Mission
The Hereditary Disease Foundation focuses on curing Huntington’s disease and its devastating consequences to individuals and families with the disease. Since HD is caused by a single gene, it serves as the model to potentially unlock cures for more complex brain disorders like Parkinson’s, Alzheimer’s and Lou Gehrig’s (ALS) diseases. Today the Foundation continues to fund innovative research toward curing Huntington's disease and impacting other brain disorders.
About
The Hereditary Disease Foundation commemorates its 50th year by making an even greater impact toward developing novel therapeutics and cures. We have put in place strategies and new grant funding programs to maximize our effectiveness. We have been funding catalytic and paradigm-changing research since our birth - including identifying the Huntington's Disease marker in 1983 and the HD Gene in 1993, and supporting gene silencing approaches since 2002. We want to continue to make an impact by funding research that pushes the envelope.The Hereditary Disease Foundation provides funding for research that advances the discovery and development of treatments for Huntington's Disease and other brain disorders. We are passionate about funding and the Foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for neurodegenerative diseases, including Huntington's Disease. The Hereditary Disease Foundation funds the most innovative, creative and paradigm-changing research possible. The data generated with HDF funding often allows researchers to get initial findings that help them apply successfully for larger, long-term funding from other funding agencies, including the National Institutes of Health. The Foundation's current focus is on:1) Modifier Studies - On DNA repair pathways, protein degradation and other modifiers of phenotype and age of onset.2) Research mechanisms of HD neurogeneration and biomarkers and therapy for HD-induced neurodegeneration.Type of funding:The Basic Research Grants Program: Supports projects contributing to identifying and understanding the fundamental defects in Huntington's Disease. Postdoctoral Fellowships: These postdoctoral fellowships are intended to cultivate interest in Huntington's Disease research by bright young scientists. Fellowships are granted to those who possess imagination, rigor, creativity and spirit to push forward toward a cure for HD and ensure that these learning can be applied to other brain diseases.
Interesting data from their 2019 990 filing
The non-profit's mission is outlined in the filing as being “To fund innovative research towards curing huntington's disease and impacting other brain disorders.”.
When outlining its responsibilities, they were referred to as: “To fund innovative research towards curing huntington's disease and impacting other brain disorders.”.
- The state in which the non-profit operates has been officially reported as CA.
- The filing reveals the non-profit's address in 2019 to be 601 West 168th Street 54, New York, NY, 10032.
- As per the non-profit's form for 2019, they have 3 employees on their payroll.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Has foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $553,698.
- The CEO salary policy within the organization is subject to review and endorsement by an impartial party.
- The organization has 15 independent voting members.
- The organization has a professional fund raiser.
- The organization was formed in 1968.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $374,694 in salary, compensation, and benefits to its employees.
- The organization pays $217,779 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization grants to a related person.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.
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