The Ryr 1 Foundation
The Ryr 1 Foundation
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More about this organization
Mission
The RYR-1 Foundation's mission is to support research leading to an effective treatment or a cure for RYR-1-related diseases by: 1) Research: We make grants to researchers interested in RYR-1-related diseases and developing a patient registry. 2) Medical professional education: The vast majority of medical professionals have never heard of RYR-1-related diseases. We raise awareness through resources on our website, as well as direct meetings with medical professionals around the world. 3) Patient/family support and advocacy: We serve as a resource for patients and their families through our website, other forms of social media, and biennial international family conferences.
About
Patient outreach and education - The foundation raises awareness through resources on its website, including the latest medical literature, as well as direct meetings with physicians around the world. The foundation serves as a resource for patients and their families through its website, other forms of social media, and family conferences.
