Wiedemann-Steiner Syndrome Foundation
Wiedemann-Steiner Syndrome Foundation
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About this organization
Mission
Educate those affected by Wiedemann-Steiner syndrome, a rare genetic condition, and to support and advocate for ongoing scientific research.
About
Expanded outreach through its family volunteers to serve as regional ambassadors and hosted several activities to raise awareness of WSS including the WSS international family conference, annual WSS triathlon, and international WSS awareness day.
Interesting data from their 2020 990 filing
The filing clearly states the mission of the non-profit as “The wiedemann-steiner syndrome (wss) foundation serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. together we advocate for comprehensive research with meaningful discoveries and connect the wss community through thoughtful engagement.”.
When outlining its functions, they were explained as: “Educate those affected by wiedemann-steiner syndrome, a rare genetic condition, and to support and advocate for ongoing scientific research.”.
- In compliance with legal regulations, the non-profit has reported their state of operation as CA.
- The filing records the non-profit's address for 2020 as 1314 44TH STREET, SACRAMENTO, CA, 95819.
- As of 2020, the non-profit's form reports a total of 0 employees.
- Is not a private foundation.
- Expenses are less than $100,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $128,449.
- The organization has 7 independent voting members.
- The organization was formed in 2016.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $4,941 in fundraising expenses.