Choroideremia Research Foundation Inc
Choroideremia Research Foundation Inc
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About this organization
Mission
To raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease; and to inform the public.
About
To provide grants for choroideremia research and patient and family education and advocacy programs
Interesting data from their 2020 990 filing
According to the filing documents, the non-profit's mission is defined as “To raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public.”.
When referring to its tasks, they were referred to as: “To raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public.”.
- The non-profit's state of operation has been legally reported as MA.
- According to the latest filing, the non-profit's address in 2020 is 397 LAKESHORE LANE, CHAPEL HILL, NC, 27514.
- The total number of employees reported by the non-profit on their form for 2020 is 8.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $16,823.
- The CEO compensation policy within the organization is established through an impartial evaluation and approval.
- The organization elects its board members.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 19 independent voting members.
- The organization was formed in 2000.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $127,078 in salary, compensation, and benefits to its employees.
- The organization pays $60,572 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has a business related family member transaction.
- The organization has a business related organization transaction.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.
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