Cure Tay-Sachs Foundation
Cure Tay-Sachs Foundation
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About this organization
Mission
The Cure Tay-Sachs Foundation has been created to fund the research initiatives that show promise to treat and ultimately cure Tay-Sachs disease (TSD). TSD is hereditary disease passed on when two carrier parents both pass the Tay-Sachs gene to their child. Tay-Sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as LOTS. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.
About
The Cure Tay-Sachs Foundation has been created to fund the research initiatives that show promise to treat and ultimately cure Tay-Sachs disease (TSD). TSD is hereditary disease passed on when two carrier parents both pass the Tay-Sachs gene to their child. Tay-Sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as LOTS. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.
Interesting data from their 2020 990 filing
The non-profit's aim, as indicated in the filing, is “The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. we aim to change that.”.
When referring to its functions, they were specified as: “The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. we aim to change that.”.
- The non-profit has reported their operating state as OH, as required by law.
- As stated in the filing, the non-profit's address in 2020 was 2409 E LUKE AVE, PHOENIX, AZ, 85016.
- The non-profit's form reports a total of 0 employees as of 2020.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $141,823.
- The organization has 14 independent voting members.
- The organization was formed in 2007.
- The organization pays $48,000 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
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