National Pku Alliance Inc
National Pku Alliance Inc
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About this organization
Mission
The National PKU Alliance (NPKUA) works to improve the lives of individuals with pku and their families while pursuing a cure.
About
Awarded $746,391 in our research program to research projects aimed at improving pku treatment and finding a cure.
Interesting data from their 2019 990 filing
The mission of the non-profit, as stated in the filing, is “The national pku alliance (npkua) works toward expanding pku research and accelerating the timeline for a cure by investing in peer-reviewed and target research. npkua provides education and support to people living with pku. npkua is the national voice for advocacy at the federal level. the board of directors includes leaders of local organizations throughout the nation, as well as representatives of the academic medical community and industry.”.
When referring to its tasks, they were described as: “To improve the lives of individuals with pku and pursue a cure.”.
- The non-profit is operating legally in the state of DE.
- The non-profit's address for the year 2019 is listed as PO BOX 1872, EAU CLAIRE, WI, 54702 in the filing.
- The form submitted by the non-profit organization for 2019 reports 7 employees.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $216,898.
- The organization has 20 independent voting members.
- The organization was formed in 2008.
- The organization pays $280,349 in salary, compensation, and benefits to its employees.
- The organization pays $180,664 in fundraising expenses.
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