American Porphyria Foundation
American Porphyria Foundation
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About this organization
Mission
Our mission is to improve the health and well-being of all individuals and families impacted by porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the porphyrias.
About
Porphyria education and research - dissemination of information to thousands of individuals affected by porphyria and grants to physicians for research
Interesting data from their 2020 990 filing
The mission of the non-profit, as stated in the filing, is “Porphyria education and research.”.
When referring to its tasks, they were described as: “Porphyria education and research.”.
- The non-profit is operating legally in the state of TX.
- The non-profit's address for the year 2020 is listed as PO BOX 326, WESTERN SPRINGS, IL, 60558 in the filing.
- The form submitted by the non-profit organization for 2020 reports 7 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is -$14,809.
- The organization has 1 independent voting members.
- The organization was formed in 1982.
- The organization is required to file Schedule B.
- The organization pays $285,020 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has grants to organizations.
Additional Non-Profits in the area
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