Pulmonary Hypertension Association Inc
Pulmonary Hypertension Association Inc
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About this organization
Mission
The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.
About
***ADVOCATE FOR THE PH COMMUNITY*** - PHA HOSTED A LEGISLATIVE LUNCHEON THAT DREW MORE THAN 100 CONGRESSIONAL STAFF TO LEARN ABOUT THE DISEASE AND HOW CONGRESS CAN IMPROVE LIVES FOR INDIVIDUALS WITH PH. PHA RESPONDED TO 300+ PHONE CALLS FROM PATIENTS SEEKING CO-PAY ASSISSTANCE RESOURCES, MORE THAN THREE TIMES THE NUMBER OF CALLS FROM PREVIOUS YEARS. PHA JOINED THE MARKETPLACE ACCESS PROJECT IN ADVOCATING FOR THE "ACCESS TO MARKETPLACE INSURANCE ACT", WHICH ULTIMATELY GARNERED 176 CO-SPONSORS.RAISED PUBLIC AND COMMUNITY AWARENESS THROUGH PSAS AND MEDIA OUTREACH (26 MILLION + IMPRESSIONS), SOCIAL MEDIA, PHANEWS E-NEWSLETTER (30,000 WEEKLY SUBSCRIBERS). PHASSOCIATION.ORG (1,200,000 ANNUAL VISITORS), AND DISTRIBUTED 3 ISSUES OF PATHLIGHT MAGAZINE (6,000 ANNUAL SUBSCRIBERS). ***EMPOWER PATIENTS AND CAREGIVERS***:PROVIDED PEER SUPPORT THROUGH 195 SUPPORT GROUPS AND 700 MEETINGS NATIONWIDE, HELPED 1,100 NEWLY DIAGNOSED PATIENTS THROUGH OUR ROADMAP TO HOPE, AND EDUCATED PATIENTS AND CAREGIVERS THROUGH OUR ONLINE PHA CLASSROOM PLATFORM WITH 41,656 VIDEO VIEWS. ***PROMOTE QUALITY PATIENT CARE***:RECORDED 1,397 ATTENDEES AT PHA'S 2018 ANNUAL CONFERENCE, OFFERED 29 NEW CONTINUING EDUCATION COURSES TO PHA ONLINE UNIVERSITY USERS THROUGH 154,531 USER SESSIONS, AND PROVIDED 2,451 HOURS OF LIVE HEALTHCARE PROFESSIONAL EDUCATION THROUGH PHA MEDICAL EDUCATION ON-DEMAND AND THE PHA PRECEPTORSHIP PROGRAM.***CATALYZE RESEARCH FOR A CURE***:AWARDED $388,650 IN PH RESEARCH GRANTS (CURRENT AND NEW) THAT INCLUDED CAREER DEVELOPMENT AND MENTORING RESEARCH GRANTS AND SUPPORT FOR THE NIH/NHLBI PVDOMICS INITIATIVE, AND DISTRIBUTED 240,000 COPIES OF ADVANCES IN PH, PHA'S MEDICAL JOURNAL DISTRIBUTED WORLDWIDE.
Interesting data from their 2020 990 filing
The filing specifies the mission of the non-profit as “To extend and improve the lives of those affected by ph.”.
When explaining its duties, they were described as: “To extend and improve the lives of those affected by pulmonary hypertension (ph).”.
- The state in which the non-profit is authorized to operate legally is FL.
- According to the filing, the address of the non-profit for the year 2020 is 801 ROEDER ROAD NO 1000, SILVER SPRING, MD, 20910.
- The non-profit has reported 34 employees on their form for the year 2020.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$447,087.
- The organization has 20 independent voting members.
- The organization was formed in 1998.
- The organization pays $2,452,565 in salary, compensation, and benefits to its employees.
- The organization pays $645,293 in fundraising expenses.
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