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Fibromuscular Dysplasia Society of America Inc.

Fibromuscular Dysplasia Society of America Inc.

North Olmsted, OH 44070
Tax ID01-0771966

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About this organization

Revenue

$224,913

Expenses

$173,027

Website

fmdsa.org

Mission

FMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.

About

Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of the disease and treatment. The specific goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the FMD Registry. The first patient was entered into the database in 2009. We currently have 15 registry centers constituting the largest FMD Registry in the world. Our goal is to continue enrolling patients and adding additional centers. 4 more centers have recently expressed interest and are up for consideration. The data from the registry helps us to learn more about FMD, how to treat the disease and drive research hopefully leading to a cure. In 2019, the International Consensus on Fibrmuscular Dysplaisia was published.

Interesting data from their 2020 990 filing

The filing sets forth the mission of the non-profit as “Fmdsa is a public health charity working towards better diagnosis and treatment of fibromuscular displasia (fmd). we do this by building awareness of fmd, funding research activities, providing patient support, and educating patients and the healthcare community.”.

When detailing its responsibilities, they were listed as: “Fmdsa is a public health charity working towards better diagnosis and treatment of fibromuscular displasia (fmd). we do this by building awareness of fmd, funding research activities, providing patient support, and educating patients and the healthcare community.”.

  • The state in which the non-profit is legally permitted to operate is DE.
  • The number of employees reported by the non-profit on their form as of 2020 is 2.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are between $100,000 and $250,000.
  • Revenue is between $100,000 and $250,000.
  • Revenue less expenses is $51,886.
  • The CEO compensation structure within the organization is based on a review and approval from a neutral party.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has 7 independent voting members.
  • The organization was formed in 2003.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule O.
  • The organization's financial statements were compiled or reviewed by an accountant.
  • The organization pays $72,189 in salary, compensation, and benefits to its employees.
  • The organization pays $17,952 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has grants to organizations.

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