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Carson Leslie Foundation

Carson Leslie Foundation

Dallas, TX 75225
Tax ID01-0945033

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About this organization

Revenue

$287,025

Expenses

$135,192

Website

carsonlesliefoundation.org

Mission

To raise funds for research leading to a cure for pediatric cancer and enrich the lives of teens in the battle.

About

Research - Chairman of the Board, Mr. Gerry McDougall, PricewaterhouseCoopers (PwC) Global Oncology Partner, launched a global analysis of the overall state of medulloblastoma. We engaged Mr. Walter Capone, an accomplished, global Biotech and Pharma leader with a 20+ year track record of accelerating breakthrough science, drug development, and commercialization to direct the project.Mr. Capone, former CEO, President of Multiple Myeloma Research Foundation, delivered a high-potential, high-impact strategic plan to achieve a cure for medulloblastoma and serves as one of CLFs Scientific Board Directors and is the driving force behind #cureMEdullo.In 2018, Capone directed our first collaborative repurposing the #cureMEdullo project to achieve US-FDA approval and create broad access to a novel treatment for the relapse of three of the most lethal cancers in children: neuroblastoma (NB), medulloblastoma (MB), and embryonal tumor with multilayer rosettes (ETMR). Children diagnosed with these three cancers have an average survival rate of50% over three years, account for over 25% of pediatric deaths from cancer, and have no cures at present.Under Mr. Capones direction, the project was submitted to the second largest cancer funding source whose grant reviewers returned an assessment that conveyed favorable feedback regarding the potential of the proposal including attainment of orphan drug designation as well as favorable FDA interactions, positive survival data and preliminary results versus historical data, as well as safety profile and final drug formulation status. Reviewers also returned a series of questions which would require a resubmission in the next round of applications. This process is standard practice.Subsequent to the request of questions, the National Cancer Institute (NCI) childhood clinical trials group that unites 9,000 experts at more than 200 leading childrens hospitals, universities, and cancer centers around the world, made the decision to launch a clinical trial of this novel treatment for the relapse of three of the most lethal cancers in children.The decision by this prestigious organization to move ahead with this project affirmed our assessment that the treatment holds great promise, and even better, the initiative does not require any further CLFs backing or matching funds and is expected to achieve many of our #cureMEdullo objectives. This was great progress in our first #cureMEdullo project! Our second #cureMEdullo project launched in 2018 was in collaboration with American Society of Clinical Oncology (ASCO). We fully funded a Young Investigator Award (ASCO-YIA) specifically for medulloblatoma, closely follow his investigation, and will eagerly report outcomes of his Cerebrospinal fluid derived circulating tumor DNA as an actionable biomarker in medulloblastoma.Each of our high-level #cureMEdullo research projects requires careful identification and thorough vetting.Also during 2018, we continued our partnership with the Cancer Prevention and Research Institute of Texas (CPRIT) by providing additional funds to CPRIT's grant recipients.

Interesting data from their 2020 990 filing

The non-profit's mission is outlined in the filing as being “To raise funds for research leading to a cure for pediatric cancer and enrich the lives of teens in the battle.”.

When outlining its responsibilities, they were referred to as: “To raise funds for research leading to a cure for pediatric cancer and enrich the lives of teens in the battle.”.

  • The state in which the non-profit operates has been officially reported as TX.
  • The filing reveals the non-profit's address in 2020 to be 6810 Deloache Ave, Dallas, TX, 75225.
  • As per the non-profit's form for 2020, they have 0 employees on their payroll.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are between $250,000 and $500,000.
  • Revenue is between $250,000 and $500,000.
  • Revenue less expenses is $151,833.
  • The CEO compensation scheme within the organization is not based on a review and endorsement by an impartial party.
  • The organization has 4 independent voting members.
  • The organization was formed in 2010.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule O.
  • The organization pays $17,171 in salary, compensation, and benefits to its employees.
  • The organization pays $15,184 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.

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