Angioma Alliance
Angioma Alliance
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About this organization
Mission
The mission of Angioma Alliance is to inform, support, and mobilize individuals affected by cavernous angioma and drive research for better treatments and a cure. We achieve this by developing and executing strategic, creative, high-return interventions as a model for rare disease. We address the need for patients to receive information and support, for researchers to obtain the subjects, materials, and information they need to move their projects forward, and for medical professionals to receive appropriate training. Our work is overseen by a group of leading cerebrovascular surgeons, neurologists, and neurogeneticists.
About
Family and scientific conferences conducted to disseminate information about CCM to those affected and their families.
Interesting data from their 2020 990 filing
From their filing, the objective of the non-profit is stated as “To inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. the organization also promotes research into a cure and prevention of the disease.”.
When talking about its functions, they were outlined as: “The mission of angioma alliance is to inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. the organization also promotes research into a cure and prevention of the disease.”.
- The legally reported state of operation for the non-profit is VA.
- According to the filing, the non-profit's address in 2020 is 520 WEST 21ST STREET, NORFOLK, VA, 23517.
- The non-profit organization as of 2020 has a total of 4 employees reported on their form.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $73,895.
- The organization has 10 independent voting members.
- The organization was formed in 2002.
- The organization pays $263,152 in salary, compensation, and benefits to its employees.
- The organization pays $71,891 in fundraising expenses.
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