Vhl Alliance Inc
Vhl Alliance Inc
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More about this organization
Mission
Improving quality of life and health outcomes for VHL patients, families, and caregivers with inclusive community building, connections to excellent education and treatment options, and advancements in medical research.[4]
About
The VHL Alliance provides a quarterly newsletter, on-line services, telephone outreach and other services for VHL patients & family members to be able to communicate current VHL research & medical information. The VHL Alliance also provides educational material including patient handbooks and brochures on living with VHL disease. The VHL Alliance also holds medical/research symposiums, an annual conferences & recurring seminars, and maintains education & research programs such as the tissue bank and the central VHL database.
