Vhl Alliance Inc
Vhl Alliance Inc
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About this organization
Mission
Improving quality of life and health outcomes for VHL patients, families, and caregivers with inclusive community building, connections to excellent education and treatment options, and advancements in medical research.[4]
About
The VHL Alliance provides a quarterly newsletter, on-line services, telephone outreach and other services for VHL patients & family members to be able to communicate current VHL research & medical information. The VHL Alliance also provides educational material including patient handbooks and brochures on living with VHL disease. The VHL Alliance also holds medical/research symposiums, an annual conferences & recurring seminars, and maintains education & research programs such as the tissue bank and the central VHL database.
Interesting data from their 2019 990 filing
From their filing, the objective of the non-profit is stated as “The vhl alliance is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by vhl disease.”.
When talking about its functions, they were outlined as: “To support efforts to cure von-hippel-lindau disease; to provide a support network for patients & their families; to educate & inform the public & the medical community on current developments.”.
- The legally reported state of operation for the non-profit is MA.
- According to the filing, the non-profit's address in 2019 is 1208 VFW PARKWAY NO 303, BOSTON, MA, 021324344.
- The non-profit organization as of 2019 has a total of 5 employees reported on their form.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $207,386.
- The organization has 17 independent voting members.
- The organization was formed in 1993.
- The organization pays $343,325 in salary, compensation, and benefits to its employees.
- The organization pays $57,803 in fundraising expenses.