The Neuromuscular Disease Foundation
The Neuromuscular Disease Foundation
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About this organization
Mission
The Neuromuscular Disease Foundation's (NDF) mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding clinical research focused on treatments and a cure.
About
CLINICAL RESEARCH: Since 2006 NDF has been proactively seeking and funding clinical research projects to help understand GNE Myopathy (HIBM) and to hopefully help find treatments and cures. NDF is a world leader in funding scientists, universities and laboratories, the results of which have proven instrumental in how new studies are built.
Interesting data from their 2019 990 filing
The non-profit's aim, as indicated in the filing, is “The neuromuscular disease foundations (ndf) mission is to serve the gne myopathy/hibm community through patient advocacy, raising awareness, educating physicians and the general public, and funding clinical research in search for a cure for neuromuscular disease.”.
When referring to its functions, they were specified as: “To promote and fund research for genetic neuromuscular disorders and diseases. additionally, the foundation may engage in any activities that are reasonably related to or in furtherance of its stated charitable purposes.”.
- The non-profit has reported their operating state as CA, as required by law.
- As stated in the filing, the non-profit's address in 2019 was 269 South Beverly Drive 1206, Beverly Hills, CA, 90212.
- The non-profit's form reports a total of 1 employees as of 2019.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$302,061.
- The CEO's salary policy within the organization is established through a review process by an impartial entity.
- The organization has 8 independent voting members.
- The organization was formed in 2006.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $108,154 in salary, compensation, and benefits to its employees.
- The organization pays $34,410 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has fundraising events.
- The organization has grants to organizations.