American Association of Kidney Patients, Inc.
American Association of Kidney Patients, Inc.
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About this organization
Mission
As the oldest and largest, independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities. AAKP fights for early disease detection and the appropriate diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options.
About
National Patient Meeting: The AAKP National Patient Meeting is the largest gathering of kidney patients and their family members in the U.S. Hosted for more than 40 years, patients and their care partners gain the knowledge, information, and advocacy skills needed to be even more effective in using their voices and experiences to improve access and quality of care; influence public policy decisions; be a leader in their healthcare team; and make informed decisions regarding their healthcare plan. The patient meeting attracts more than 250 attendees comprised of patients, family members, healthcare professionals, government representatives and industry partners. Esteemed members from across the renal community including: allied organizations such as American Society of Nephrology, American Society of Transplantation, American Society of Transplant Surgeons, Renal Physicians Association; fellow non-profit organizations; industry partners and government agencies such as HHS, VA, CMS, CDC, FDA, NIH, and VA are represented.
Interesting data from their 2019 990 filing
The non-profit's mission is outlined in the filing as being “Aakp is dedicated to improving the lives and long-term”.
When outlining its responsibilities, they were referred to as: “Aakp is dedicated to improving the lives and long-term outcome of kidney patients through education, advocacy, patient engagement and the fostering of patient communities.”.
- The state in which the non-profit operates has been officially reported as FL.
- The filing reveals the non-profit's address in 2019 to be 14440 Bruce B Downs Blvd, Tampa, FL, 33613.
- As per the non-profit's form for 2019, they have 7 employees on their payroll.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is -$2,126.
- The CEO salary policy within the organization is subject to review and endorsement by an impartial party.
- The organization has 23 independent voting members.
- The organization was formed in 1973.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $338,719 in salary, compensation, and benefits to its employees.
- The organization pays $39,264 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization's financial statements were reviewed by an accountant.
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