Children's Cancer Cause
Children's Cancer Cause
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About this organization
Mission
A long, healthy life for every child with cancer. Children's Cancer Cause is the leading national advocacy organization working to achieve access to less toxic and more effective pediatric cancer therapies; to expand resources for research and specialized care; and to address the unique needs and challenges of childhood cancer survivors and their families. Children's Cancer Cause leads efforts to ensure that these needs and perspectives of children with cancer are integrated into the highest deliberations on health care and cancer policy.
About
See schedule of education: The organization leads several activities focused on educating patients, survivors, and their families about the impact of federal health policy on childhood cancer and survivorship care. Educational programs include a monthly e-newsletter, a virtual survivor toolkit, and a parent advocate training program called Translating Our Voices into Action. Each month the organization engages in a thoughtful analytical process reviewing timely and relevant policy issues impacting children with cancer. This information is distributed via the e-newsletter and shared through the organization's social media networks to patients, survivors and families. The website also features a virtual survivor toolkit that evolved from Survivor Rise to Action conferences. The toolkit is updated regularly with educational information, helpful resources, and relevant news articles on a range of topics related to childhood cancer survivorship. The virtual portal also includes slideshow videos with audio of many presentations given by leading oncologists and survivorship experts from around the country. Children's Cancer Awareness and Advocacy Day: This day brings together pediatric patients, young adult survivors, and families for a day of mobilizing against childhood cancer. The organization partners with other organizations to offer a training workshop for the lobby day which familiarizes survivors with the federal legislative and appropriations process and instructs attendees on effective messaging strategies for visits with congressional members and staff. Public policy advocacy: Through presentations to government agencies, policy makers, coalitions, and stakeholders, this program provides information on the impact of federal policy on children with cancer and survivors. The purpose is to facilitate the development and approval of more effective and less toxic therapies for children with cancer and ensures appropriate care for survivors through education on the barriers to drug development and the consequences of current treatments. The organization also utilizes website education and monthly newsletters to facilitate their cause.
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