Children's Tumor Foundation
Children's Tumor Foundation
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About this organization
Mission
Neurofibromatosis (NF) causes tumors to grow on nerves throughout the body, and affects 1 in every 3,000 people of every population. Our mission: Drive research, expand knowledge, and advance care for the NF community. Our vision: End NF.
About
Research - The Children's Tumor Foundation supports NF research through a range of funding mechanisms. Our investments in research are three-fold: 1) to attract talented investigators to NF research; 2) to support innovative research; and 3) to foster collaborative efforts to find treatments and cures for neurofibromatosis. The foundation has been at the forefront of key advances in NF research including funding the laboratories that discovered the NF1 and NF2 genes, supporting groundbreaking clinical trials, and establishing the first nationwide NF clinic network and NF patient registry. The foundation sponsors an annual scientific conference which brings researchers together to discuss the latest scientific developments related to NF. Additionally, our programs are designed to integrate with and support larger federally funded projects through the Congressionally Directed Medical Research Program (CDMRP) and NIH.
Interesting data from their 2020 990 filing
The non-profit's aim, as stated in the filing, is “Our mission: drive research, expand knowledge, and advance care for the nf community. our vision: end nf.”.
When referring to its actions, they were outlined as: “The children's tumor foundation is dedicated to ending neurofibromatosis (nf). our mission is to: a.) fund research, b.) increase public awareness, c.) support patients and families, d.) encourage establishment of nf clinics.”.
- The non-profit has complied with legal obligations by reporting their state of operation as NY.
- The non-profit's address in 2020 is noted in the filing as 370 LEXINGTON AVE NO 2100, NEW YORK, NY, 10017.
- The non-profit's form for 2020 reports a total of 43 employees.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $6,630,455.
- The organization has 23 independent voting members.
- The organization was formed in 1978.
- The organization pays $4,085,516 in salary, compensation, and benefits to its employees.
- The organization pays $877,648 in fundraising expenses.
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