Daffy

Children's Brain Tumor Foundation, Inc.

Children's Brain Tumor Foundation, Inc.

New York, NY 10036
Tax ID13-3512123

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About this organization

Revenue

$1,902,145

Expenses

$1,858,825

Website

cbtf.org

Mission

The Children's Brain Tumor Foundation (CBTF) was founded in 1988 by a group of dedicated parents, physicians, and friends to improve the treatment, quality of life, and the long term outlook for children with brain and spinal cord tumors through research support, education, and advocacy to families and survivors. In addition to providing funds to research a cure, the organization is the nation's leader in quality of life programs for families impacted by brain and spinal cord tumors. We support families from the day of diagnosis and throughout the brain tumor journey.

About

Provided transition support from elementary school through college and continued the only career program for young adult brain tumor survivors. Held the only week-long conferences (three) for brain tumor survivors and held the only father/survivor retreat in the US. Funded a staff social worker who provides programs for bereaved families. Continued funding of the Children's Brain Tumor Tissue Consortium-an international, multi-institutional research program dedicated to the study and treatment of childhood brain tumors.

Interesting data from their 2019 990 filing

In the filing, the mission of the non-profit is noted as “Children's brain tumor foundation works on improving the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor”.

When referring to its responsibilities, they were outlined as: “To improve treatment, quality of life and and long-term outlook for children with brain and spinal cord tumors through grants for research and support, education and advocacy for families and survivors.”.

  • The state in which the non-profit is legally registered to operate is NY, as per legal records.
  • According to the non-profit's form, they have 8 employees on their payroll as of 2019.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor-advised fund.
  • Is not a private foundation.
  • Expenses are greater than $1,000,000.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is $43,320.
  • The CEO remuneration plan within the organization is subject to review and approval by an independent source.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has 11 independent voting members.
  • The organization has a professional fund raiser.
  • The organization was formed in 1988.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule O.
  • The organization pays $477,141 in salary, compensation, and benefits to its employees.
  • The organization pays $487,069 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.