
Children's Brain Tumor Foundation, Inc.
Children's Brain Tumor Foundation, Inc.
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More about this organization
Mission
The Children's Brain Tumor Foundation (CBTF) was founded in 1988 by a group of dedicated parents, physicians, and friends to improve the treatment, quality of life, and the long term outlook for children with brain and spinal cord tumors through research support, education, and advocacy to families and survivors. In addition to providing funds to research a cure, the organization is the nation's leader in quality of life programs for families impacted by brain and spinal cord tumors. We support families from the day of diagnosis and throughout the brain tumor journey.
About
Provided transition support from elementary school through college and continued the only career program for young adult brain tumor survivors. Held the only week-long conferences (three) for brain tumor survivors and held the only father/survivor retreat in the US. Funded a staff social worker who provides programs for bereaved families. Continued funding of the Children's Brain Tumor Tissue Consortium-an international, multi-institutional research program dedicated to the study and treatment of childhood brain tumors.
