Moebius Syndrome Foundation
Moebius Syndrome Foundation
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About this organization
Mission
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius Syndrome and their families, promote greater awareness and understanding of Moebius Syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius Syndrome and its associated conditions.
About
Provide information and support to individuals with Moebius Syndrome and their families. The newsletter and biannual conference are the primary means of accomplishing this goal.
Interesting data from their 2019 990 filing
From their filing, the objective of the non-profit is stated as “The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.”.
When talking about its functions, they were outlined as: “The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.”.
- The legally reported state of operation for the non-profit is MO.
- According to the filing, the non-profit's address in 2019 is 6879 HIGHWAY 135, PILOT GROVE, MO, 65276.
- The non-profit organization as of 2019 has a total of 0 employees reported on their form.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$83,358.
- The organization has 9 independent voting members.
- The organization was formed in 1994.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $3,670 in fundraising expenses.