Alport Syndrome Foundation Inc
Alport Syndrome Foundation Inc
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More about this organization
Mission
Our mission is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and research. Our vision is to conquer Alport syndrome, a rare genetic disease that causes kidney failure, hearing loss and vision problems.
About
Competitive research funding program. The ASF research program is funded in large part by the annual campaign for healthy kidneys as well as other fundraising events. ASF has developed strategic alliances and international partnerships to increase the resources applied to finding novel treatments and a cure. Since 2010, ASF and its partners have provided more than 2 million dollars on research projects for Alport syndrome that have focused on correcting the genetic defect in cells derived from patients, basic science on the structures of the kidney that affect the basement membrane and disease progression, protein replacement therapy, microrna therapy, antibody therapy, and drug repurposing.
