Narcolepsy Network, Inc.
Narcolepsy Network, Inc.
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About this organization
Mission
Our mission is to: educate and inform individuals with narcolepsy about this life-long neurological sleep disorder, available treatments and symptom management; provide emotional support and resources to patients, family members, and friends; encourage and assist in the formation of local support groups and other support systems; serve as a resource center for patients, medical providers, educators, employers, and members of the public; advocate for the interests of all persons with narcolepsy; promote early diagnosis, optimal treatment and scientific research; increase public awareness of narcolepsy.
About
CONFERENCES: Each year Narcolepsy Network (NN) hosts a conference in a different city, which creates a unique gathering for, support, education, awareness building, and networking among people affected by narcolepsy. A selection of workshops, lectures, support forums, energizers and creative activities are some of the offerings at the conference. Graduate students and professionals in health, education, science and government can get a unique perspective on narcolepsy and the effect it has on individuals and families. In 2019, NN hosted the annual conference in Albuquerque, NM. Almost 350 people with narcolepsy and their supporters attended from all over the world. The conference offered special programming for children and young adults with narcolepsy as well as sessions on research treatment and advocacy. The annual membership meeting was held at the conference. NN also began hosting One Day Seminars in various cities around the country similar to the Annual Conference but on a smaller scale. The first seminar was held in New York, NY with 80 people in attendance.
Interesting data from their 2020 990 filing
In the filing, the mission of the non-profit is noted as “The purposes for which the corporation is organized are: educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide for the formation of chapters, provide funding through solicitation and fund-raising activities for the above-mentioned purposes.”.
When referring to its responsibilities, they were outlined as: “Narcolepsy network is dedicated to improving the lives of people with narcolepsy. goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research.”.
- The state in which the non-profit is legally registered to operate is NJ, as per legal records.
- The filing documents the non-profit's address in 2020 as PO Box 2178, Lynnwood, WA, 98036.
- According to the non-profit's form, they have 6 employees on their payroll as of 2020.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $156,186.
- The organization has 8 independent voting members.
- The organization was formed in 1986.
- The organization pays $184,147 in salary, compensation, and benefits to its employees.
- The organization pays $32,918 in fundraising expenses.
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