Myelodysplastic Syndromes Foundation
Myelodysplastic Syndromes Foundation
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More about this organization
Mission
The MDS foundation, Inc. is an international non-profit advocacy organization whose mission is to support and educate patients and healthcare providers with innovative research into the fields of MDS, acute myeloid leukemia (AML) and related myeloid neoplasms in order to accelerate progress leading to the diagnosis, control and cure of these diseases.
About
The foundation continued its extensive patient advocacy outreach initiatives in 2018. The foundation staff communicates daily with patients and caregivers providing support and education regarding the myelodysplastic syndromes in the following formats: patient information via the foundations new 'building blocks of hope' initiative, MDS foundation newsletters, and through the MDS foundation website and social media campaigns. On-site patient liason support is also provided including referrals to the MDS centers of excellence, providing information on current treatment options and available clinical trials, responses to email and social media inquiries, and providing a connection between MDS patients upon request.