Barth Syndrome Foundation Inc
Barth Syndrome Foundation Inc
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About this organization
Mission
The Barth Syndrome Foundation (BSF) is dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS).
About
The Barth Syndrome Science, Medicine & Research Program in 2019 was comprised of a) the BSF research program to foster scientific and clinical investigations into Barth syndrome to facilitate the development of a specific treatment or a cure for this disease, and b) the Barth Syndrome Medical Database and Bio-Repository for the collection and storage of medical information/samples on individuals with Barth syndrome over time to gain a better understanding of the disease.
Interesting data from their 2020 990 filing
The filing specifies the mission of the non-profit as “The barth syndrome foundation is an engaged, global community whose mission is saving lives through education, advances in treatment, and finding a cure for barth syndrome.”.
When explaining its duties, they were described as: “1)to promote awareness of barth syndrome; 2) to educate and support physicians, research centers, and organizations addressing the causes, diagnosis, treatment and cure of barth syndrome; and 3) to assist in the support of those suffering from barth syndrome and their families.”.
- The state in which the non-profit is authorized to operate legally is DE.
- According to the filing, the address of the non-profit for the year 2020 is 2005 PALMER AVENUE NO 1033, LARCHMONT, NY, 10538.
- The non-profit has reported 5 employees on their form for the year 2020.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$165,614.
- The organization has 12 independent voting members.
- The organization was formed in 2000.
- The organization pays $561,697 in salary, compensation, and benefits to its employees.
- The organization pays $74,333 in fundraising expenses.