ALS Hope Foundation
ALS Hope Foundation
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About this organization
Mission
The mission of the ALS Hope Foundation is to provide long-term support to: Clinical centers of excellence for the care and treatment of people with ALS Clinical and basic research programs leading to a cure Support programs for people with ALS and their caregivers that optimize care and promote independence Programs that promote education about diagnosis, treatment, and care
About
Founded in 1999 by Terry Heiman-Patterson, MD, and Jeffrey Deitch, PhD, the ALS Hope Foundation provides funding for the MDA/ALS Center of Hope at Temple University Lewis Katz School of Medicine, one of the first multidisciplinary ALS clinics in the country, and the Neuromuscular Research Laboratory at Temple University College of Medicine. The Foundation also provides educational events to inform people living with ALS and the public about ALS research. The ALS Hope Foundation funds local and international efforts to find the cause and cure of ALS. This much needed support is generated through fundraisers and private donations. We are honored to have spent more than 24 years serving the ALS community and are committed to continuing our work until there is a cure.
Interesting data from their 2020 990 filing
The purpose of the non-profit is outlined in the filing as “See schedule o”.
When discussing its operations, they were defined as: “Organization's mission or most significant activities are to provide long-term support to 1) basic and clinical research programs leading to a cure, 2) clinical centers of excellence for the care and treatment of patients with als, 3) support programs for patients and care-givers that optimize care and promote independence of the patient., and 4) programs that promote patient and physician education about the diagnosis, treatment and caring for the patient with als. the als hope foundation is working to -establish a team of talented and imaginative scientists who will work cooperatively to accelerate als research -provide these researchers with stable funding to ensure that als research continues uninterrupted -provide funding for innovative, groundbreaking research across the country where traditional funding sources are not forthcoming.”.
- The state where the non-profit operates has been legally reported as PA.
- The filing indicates that the non-profit's address in 2020 is located at P O Box 40777, Philadelphia, PA, 191070777.
- The non-profit has reported 2 employees on their form as of 2020.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $68,562.
- The organization has 13 independent voting members.
- The organization was formed in 1999.
- The organization pays $98,523 in salary, compensation, and benefits to its employees.
- The organization pays $51,106 in fundraising expenses.
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