United Mitochondrial Disease Foundation
United Mitochondrial Disease Foundation
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About this organization
Mission
To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, UMDF has provided nearly $12 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure. UMDF hosts an annual international symposium bringing together the best physicians and researchers for patients and family members to gain valuable information. We advocate on the national level and empower members to advocate on the local level regarding issues of medical funding and children's health issues as well as social services for the medically fragile and disabled. UMDF provides support to our affected patients and families through a dedicated staff partner.
About
Funding research for cures and treatments of mitochondrial disorders.
Interesting data from their 2020 990 filing
The filing reveals the mission of the non-profit as “To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.”.
When detailing its functions, they were listed as: “To promote research for cures and treatments of mitochondrial disorders and to provide support to affected families.”.
- According to the law, the state where the non-profit operates has been reported as PA.
- The filing specifies that the non-profit's address in 2020 was 8085 Saltsburg Road No 201, Pittsburgh, PA, 15239.
- As of 2020, the non-profit's form shows they have a total of 17 employees.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $419,816.
- The organization has 14 independent voting members.
- The organization was formed in 1995.
- The organization pays $1,433,928 in salary, compensation, and benefits to its employees.
- The organization pays $397,274 in fundraising expenses.
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