Foundation for Angelman Syndrome Therapeutics
Foundation for Angelman Syndrome Therapeutics
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More about this organization
Mission
Fast is run by an all-volunteer board of Angelman syndrome (AS) parents and professionals dedicated to finding a cure for AS and related disorders through the funding of an aggressive research agenda. The foundation is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life. Our goal is to bring practical treatment into current medical practice as quickly as possible. It is our hope that grants we fund will lead to additional research support from government agencies, other funding sources and organizations around the globe. Fast is served by two boards: the board of directors and the scientific advisory board. Together, we are working hard to bring practical treatment into current medical practice as quickly as possible.
About
Fast's primary goal is to advance research leading to a cure for AS.
Interesting data from their 2020 990 filing
In the filing, the mission of the non-profit is noted as “Angelman syndrome (as) is a neurodevelopmental disorder characterized by global development delays and severe speech impairment. a few individuals with as develop functional speech, but most communicate through a mixture of gestures, eye gaze, adapted sign language and augumentative communication devices. individuals with as have development delay and intellectual disabilities. current research suggests that neuronal development occurs correctly in as, but neuronal functioning is impaired. this neuronal impairment impacts the individual's ability to learn in that skills are acquired less rapidly than in age-matched peers. the foundation for angelman syndrome therapeutics is an organization of families and professionals dedicated to finding a cure for as and related disorders through the funding of an agressive research agenda, education, advocacy, and community support. fast is committed to assisting individuals living with as to realize their full potential and quality of life.”.
When referring to its responsibilities, they were outlined as: “The foundation for angelman syndrome therapeutics (fast) is dedicated to finding a cure for angelman syndrome (as) and related disorders through the funding of an agressive research agenda, education, awareness, and advocacy.”.
- The state in which the non-profit is legally registered to operate is IL, as per legal records.
- The filing documents the non-profit's address in 2020 as PO BOX 608, DOWNERS GROVE, IL, 60515.
- According to the non-profit's form, they have 1 employees on their payroll as of 2020.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $2,326,325.
- The organization has 14 independent voting members.
- The organization was formed in 2008.
- The organization pays $62,046 in salary, compensation, and benefits to its employees.
- The organization pays $85,551 in fundraising expenses.