Danny Did Foundation
Danny Did Foundation
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More about this organization
Mission
Founded by Chicago parents Mike and Mariann Stanton in January 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation's primary mission is to prevent deaths caused by seizures. The Foundation is dedicated to advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families impacted by seizures, and gaining mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths. The name of the Danny Did Foundation originates from the last line of Danny Stanton's obituary, written by his dad: “Please go and enjoy your life. Danny did."
About
THE DANNY DID FOUNDATION HOLDS AS ITS MAIN GOALS 1) ADVANCING AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), 2) ENHANCING THE SUDEP COMMUNICATION MODEL BETWEEN MEDICAL PROFESSIONALS AND FAMILIES WHO ARE IMPACTED BY SEIZURES, AND 3) THE MAINSTREAMING OF DEVICES AND TECHNOLOGIES THAT MAY ASSIST IN PREVENTING DEATHS CAUSED BY SEIZURES. DANNY DID ACHIEVED THESE GOALS BY SUBSIDIZING THE COST OF THE EMFIT MOVEMENT MONITOR FOR 31 FAMILIES IN NEED, SUBSIDIZING THE COST OF THE SMARTWATCH DEVICE FOR 40 FAMILIES IN NEED, SUBSIDIZING THE COST OF SAMI ALERT DEVICES FOR 106 FAMILIES IN NEED, SUBSIDIZING THE COST OF SLEEP SAFE ANTI-SUFFOCATION PILLOWS FOR 3 FAMILIES IN NEED; SUBSIDIZING THE COST OF PULSEGUARD DEVICES FOR 23 FAMILIES IN NEED; AND COUNSELING HUNDREDS OF ADDITIONAL FAMILIES REGARDING THESE OPTIONS. DANNY DID ALSO REACHED ITS GOALS VIA THE DISTRIBUTION OF ITS SEIZURE SAFETY AND SUDEP BROCHURES TO HOSPITALS, DOCTORS, ADVOCATES AND FAMILIES NATIONWIDE, IN BOTH ENGLISH AND SPANISH; BY USING PRINT ADS, RADIO ADS, BILLBOARDS AND SOCIAL MEDIA TO ADVANCE AWARENESS AND EDUCATION; BY SPONSORING SUDEP-RELATED EVENTS; AND BY PRESENTING AT CONFERENCES, SCHOOLS AND MEETINGS ACROSS THE COUNTRY TO SPREAD UNDERSTANDING AND TOLERANCE FOR SEIZURES AND PEOPLE WITH EPILEPSY. DANNY DID ALSO FUNDED SCHOLARSHIPS FOR 36 FAMILIES TO ATTEND THE EPILEPSY EDUCATIONAL EXPO AND AWARENESS DAY AT DISNEYLAND.
