National Foundation for Ectodermal Dysplasias
National Foundation for Ectodermal Dysplasias
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About this organization
Mission
To empower and connect people touched by ectodermal dysplasias through education, support, and research.
About
Support - the family support teams, comprised of family members and affected individuals, oversees NFED's support programs that seek to empower and connect individuals affected by ectodermal dysplasias and their families. NFED publishes high quality information to provide families with knowledge that will increase their quality of life. Information is shared through the first connect program, a web site, medical/dental guide series, and conferences. The national family conference is NFED's hallmark program bringing entire families together to learn, share and network with one another and with expert care providers. Affected children and their siblings attend kids camp at the conferences where they participate in educational and social activities with other children like them to develop self esteem. NFED provides financial assistance to individuals to attend the family conference. NFED's family to family network connects families with a caring liaison in their region who can provide moral support, information and practical advice, guidance and resources.
Interesting data from their 2020 990 filing
The non-profit's mission, as described in the filing, is “To empower and connect people touched by ectodermal dysplasias through education, support, and research.”.
When describing its duties, they were characterized as: “To empower and connect people touched by ectodermal dysplasias through education, support, and research.”.
- The non-profit has complied with legal regulations by reporting their state of operation as IL.
- The filing shows that the non-profit's address as of 2020 is 6 EXECUTIVE DRIVE SUITE 2, FAIRVIEW HEIGHTS, IL, 62208.
- As of 2020, the non-profit has reported a total of 7 employees on their form.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $229,678.
- The organization has 9 independent voting members.
- The organization was formed in 1981.
- The organization pays $397,716 in salary, compensation, and benefits to its employees.
- The organization pays $90,533 in fundraising expenses.