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Be The Match Foundation

Be The Match Foundation

Minneapolis, MN 55401
Tax ID41-1704734

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About this organization

Revenue

$11,686,167

Expenses

$13,940,845

Website

bethematch.org

Mission

Be The Match Foundation supports the life-saving mission of Be The Match/National Marrow Donor Program, ensuring that patients diagnosed with blood cancers such as leukemia and other diseases get the stem cell transplant they need for a second chance at life. A transplant offers hope for a cure. We connect patients with their genetically matched stem cell donors and provide comprehensive support throughout the transplant journey, from diagnosis through recovery, and we conduct medical research to improved outcomes and quality of life for transplant patients. Our patients and stem cell donors are primarily in the United States, but many donors and patients served by our mission are based internationally; at locations throughout the globe.

About

PATIENT ASSISTANCE BE THE MATCH FOUNDATION (BTMF) PROVIDES FINANCIAL ASSISTANCE TO PATIENTS THROUGHOUT EACH STAGE OF THE TRANSPLANT PROCESS. MORE THAN $4M WAS PROVIDED TO PATIENTS IN NEED THIS YEAR. TWO GRANT PROGRAMS SUPPORT PATIENTS PRE-TRANSPLANT AND ARE DESIGNED TO HELP PATIENTS WHO HAVE INSURANCE AND FINANCIAL BARRIERS THAT DELAY OR PREVENT THEM FROM FINDING A DONOR. THE FAMILY TYPING GRANT (FTG) PAYS LABS, ON BEHALF OF THE PATIENTS, FOR THE TYPING OF FIRST DEGREE RELATIVES NEEDED TO IDENTIFY IF THERE IS A DONOR IN THE FAMILY. THE FTG HELPED 229 PATIENTS THIS FISCAL YEAR. FOR THOSE WITHOUT A DONOR IN THEIR FAMILY, SEARCH ASSISTANCE FUNDS (SAF) HELPS PATIENTS START THE UNRELATED DONOR SEARCH PROCESS BY GIVING TRANSPLANT CENTERS A GUARANTEE OF PAYMENT FOR SPECIFIC SEARCH AND/OR PROCUREMENT COSTS. THERE WERE 611 PATIENTS APPROVED FOR SAF THIS FISCAL YEAR. BTMF ALSO PROVIDES TWO POST-TRANSPLANT GRANTS TO HELP WITH THE MANY UNCOVERED EXTRA EXPENSES PATIENTS EXPERIENCE FOLLOWING A TRANSPLANT. THE TRANSPLANT SUPPORT ASSISTANCE (TSA) GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED FAMILIES WITHIN THE FIRST YEAR AFTER TRANSPLANT. TSA HELPS WITH EXTRA EXPENSES, SUCH AS TRANSPORTATION, TEMPORARY RELOCATION, CO-PAYS, AND INSURANCE PREMIUMS. THIS YEAR 1,242 PATIENT AWARDS WERE GRANTED TSA - WITH THE AVERAGE GRANT AWARD BEING $2,000. THE JOHN AND CARYN CAMIOLO SURVIVORSHIP GRANT (CAM) PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS, WHO ARE BEYOND ONE YEAR POST TRANSPLANT AND WHO HAVE BEEN DIAGNOSED WITH CHRONIC GRAFT- VERSUS-HOST DISEASE. CAM HELPS WITH UNCOVERED COSTS OF TREATMENT AND PRESCRIPTIONS. THIS FISCAL YEAR, 96 PATIENTS WERE HELPED THROUGH THE CAM PROGRAM WITH THE AVERAGE GRANT BEING $500.

Interesting data from their 2019 990 filing

The filing documents outline the non-profit's mission as “For patients with blood cancers like leukemia, lymphoma, or other life-threatening blood disorders, there is hope for a cure through marrow transplantation. the first step is to find a matched donor, but 70% percent of patients do not have a suitably matched donor in their family, and depend on our be the match registry to find a marrow donor. with the support of our contributors, each year, we: - facilitate more marrow and cord blood transplants - grow and diversify the world's largest and most diverse donor registry - support patients and their families before, during and after transplant - conduct research and education to expand treatment and improve outcomes - engage the public in our life-saving mission. as the world's leading nonprofit organization focused on saving lives through cellular therapy, be the match continues to improve access to transplant by leading efforts to remove barriers to treatment and strengthen our ability to meet the growing need. thanks to our community o”.

When outlining the tasks it performs, they were referred to as: “Fundraising to support the mission of the national marrow donor program (nmdp)/ be the match: to save lives through cellular therapy.”.

  • The non-profit's reported state of operation is MN as per legal requirements.
  • The filing reveals that the address of the non-profit in 2019 is 500 N 5th St, Minneapolis, MN, 554011206.
  • As of 2019, the non-profit has 29 employees reported on their 990 form.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are greater than $1,000,000.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is -$2,254,678.
  • The compensation policy for the CEO of the organization is established through a review and endorsement from an independent source.
  • The organization elects its board members.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has a foreign financial account.
  • The organization has 15 independent voting members.
  • The organization has a professional fund raiser.
  • The organization was formed in 1991.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule J.
  • The organization is required to file Schedule O.
  • The organization pays $3,096,383 in salary, compensation, and benefits to its employees.
  • The organization pays $1,475,153 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization pays grants to individuals.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.

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