The Association for Frontotemporal Degeneration
The Association for Frontotemporal Degeneration
Want to make a donation using Daffy?
Lower your income taxes with a charitable deduction this year when you donate to this non-profit via Daffy.
Do you work for The Association for Frontotemporal Degeneration? Learn more here.
About this organization
Mission
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance: Research. We promote and fund research toward diagnosis, treatment and a cure. Awareness. We stimulate greater public awareness and understanding. Support. We provide information and support to those directly impacted. Education. We promote and provide education for healthcare professionals. Advocacy. We advocate for research and appropriate, affordable services.
About
Research - Each year AFTD invests in the science that will drive discovery and development of accurate diagnosis and the first therapeutics for FTD. To that end, AFTD awarded multiple grants during FY19, including two postdoctoral fellowships, three pilot grants and four biomarkers grants. AFTD invested $2.5 million into the Diagnostics Accelerator Program, an initiative of the Alzheimer's Drug Discovery Foundation that is working to develop methods that will more effectively diagnose all types of dementia. AFTD further deepened its commitment to discovering viable FTD biomarkers throughout the year. In February, AFTD hosted a workshop on the development of TDP-43 biomarkers for FTD, convening scientists and key opinion leaders in academia and industry. Additionally, AFTD became a partner in the Foundation for the National Institutes of Health's Biomarkers Consortium.
Interesting data from their 2019 990 filing
The non-profit's aim, as indicated in the filing, is “Promote and fund research into developing better diagnostic processes, therapies, and cures for frontotemporal degeneration (ftd); provide information, education, support and advocacy to persons diagnosed with ftd, their families and caregivers; educate physicians and other health professionals about ftd and how to improve patient care; bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it; advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality long-term health care and social services.”.
When referring to its functions, they were specified as: “Promote and fund research into developing better diagnostic processes, therapies, and cures for frontotemporal degeneration (ftd); provide information, education, support and advocacy to persons diagnosed with ftd, their families and caregivers; educate physicians and other health professionals about ftd and how to improve patient care; bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it; advocate with public officials to promote public and private programs that provide appropriate, affordable and high-quality, long-term health care and social services.”.
- The non-profit has reported their operating state as PA, as required by law.
- As stated in the filing, the non-profit's address in 2019 was 290 KING OF PRUSSIA RD NO 320, RADNOR, PA, 19087.
- The non-profit's form reports a total of 24 employees as of 2019.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $2,160,109.
- The organization has 17 independent voting members.
- The organization was formed in 2002.
- The organization pays $1,974,884 in salary, compensation, and benefits to its employees.
- The organization pays $599,743 in fundraising expenses.
Additional Non-Profits in the area
By donating on this page you are making an irrevocable contribution to Daffy Charitable Fund, a 501(c)(3) public charity, and a subsequent donation recommendation to the charity listed above, subject to our Member Agreement. Contributions are generally eligible for a charitable tax-deduction and a yearly consolidated receipt will be provided by Daffy. Processing fees may be applied and will reduce the value available to send to the end charity. The recipient organizations have not provided permission for this listing and have not reviewed the content.
Donations to organizations are distributed as soon as the donation is approved and the funds are available. In the rare event that Daffy is unable to fulfill the donation request to this charity, you will be notified and given the opportunity to choose another charity. This may occur if the charity is unresponsive or if the charity is no longer in good standing with regulatory authorities.