The MHE Research Foundation
The MHE Research Foundation
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About this organization
Mission
The MHE Research Foundations five point mission is to REACH, advance & support the following: RESEARCH to assist and support researchers in order to one day discover a treatment/cure for MHE/MO/HME. Our foundation works hand in hand with researchers from around the world in this mission. EDUCATION to provide vital clinical informational guides benefiting both families and physicians. ADVOCACY bring awareness about this rare neglected bone disease throughout the world. CLINICAL to help provide resources to families enabling them to locate the medical care they require. HOPE the research being conducted on MHE/MO/HME & the informational resources will bring a better quality of life to the families affected by this syndrome around the world.
About
The MHE Research Foundation is a nonprofit 501(c)(3) organization for the support of researchers, families and physicians dealing with (MHE) Multiple Hereditary Exostoses (MO) Multiple Osteochondroma a rare genetic bone disease. Two moms whose paths crossed while desperately seeking answers for their sons, Vincent & Robert, both suffering from MHE, was the beginning of something great! It was then, in 2006, that The MHE Research Foundation was founded by Susan & Craig Eaton and Sarah Ziegler. We have become the #1 site for Research, Education, Advocacy, and Clinical Information in regards to MHE. And most importantly, HOPE. We are happy to say that all people on the board of directors and all volunteers donate their time and services and there are no salaries paid. All money raised goes directly towards research, conference expenses, and expenses incurred by the foundation to continue on our mission. Thank you for your support!
Interesting data from their 2019 990 filing
Research and education into mhe.
- Revenue reported was $104,779.
- Expenses reported were $55,870.
- The non-profit filed Schedule A section.
- Does not operate a hospital.
- Is not a donor advised fund.
- The organization does not engage in lobbying activities.
- Other expenses reported $53,928.
- The non-profit reported a excess or deficit for $48,909.
- The non-profit does not have a foreign financial account.
- Contributions, gifts, and grants reported were $48,479.
- The non-profit filed a copy of the returns in NY.
Accomplishments
- Hold an annual event to educate the community about mhe and raise funds for research. Expenses $25,750.
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