Cure Dystonia Now
Cure Dystonia Now
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About this organization
Mission
The foundation will raise money and use that money to help advance research for more and/or improved treatments for those afflicted with dystonia, and support efforts to cure the disorder. It will also help support the needs and well-being of affected individuals and families. The foundation will likely team up with and support other dystonia charities, such as Tyler's Hope and the Dystonia Medical Research Foundation in its efforts to advance research for more and/or improved treatments and ultimately a cure. Among other things, the foundation will likely fund individual drug studies in this regard.
About
The foundation is presently working with several of the preeminent scientists in the field of dystonia, who comprise our medical and scientific advisory council (MSAC). The MSAC conducts peer-review of research applications, sets the direction of research and makes recommendations to the board for funding research. In 2018, the foundation funded three grants (1) 'Understanding Neuronal Dysfunction in DYT1 Dystonia Using an Unbiased Proteomics Approach and Human Induced Pluripotent Stem Cells', (2) 'Validation of the Communicative Participation Item Bank as an Outcome Measure for Spasmodic Dysphonia and (3) 'Holistic and Modular Approaches to Exploring Dystonia Brain Networks'.
Interesting data from their 2020 990 filing
The purpose of the non-profit is listed in the filing as “Cure dystonia now inc. is committed to advancing research for more and/or improved treatments, and ultimately a cure, for dystonia.”.
When discussing its operations, they were characterized as: “The foundation will raise money and use that money to help advance research for more and/or improved treatments for those afflicted with dystonia, and support efforts to cure the disorder. it will also help support the needs and well-being of affected individuals and families. the foundation will likely team up with and support other dystonia charities, such as tyler's hope and the dystonia medical reserach foundation in its efforts to advance research for more and/or improved treatments and ultimately a cure. among other things, the foundation will likely fund individual drug studies in this regard.”.
- The non-profit's legally reported state of operation is NY.
- The filing states that the non-profit's address in the year 2020 is 201 OLD COUNTRY RD NO 205, MELVILLE, NY, 11747.
- The form submitted by the non-profit for 2020 shows a total of 0 employees.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $15,820.
- The organization has 3 independent voting members.
- The organization was formed in 2012.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $19,770 in fundraising expenses.
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