Solve Me/Cfs Initiative, Inc.
Solve Me/Cfs Initiative, Inc.
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About this organization
Mission
Support our community in the fight against infection-associated chronic conditions by catalyzing research, advocating for funding and awareness, and driving effective, data-driven solutions for ME/CFS and related diseases.
About
RESEARCH. IN 2018/2019 SOLVE M.E. FUNDED SEVEN RESEARCH PROJECTS, AS THE THIRD CLASS OF RAMSAY GRANTS FOR ME/CFS RESEARCH. BUILDING ON 2018/2019 MOMENTUM, IN 2019/2020 WE APPROVED FUNDING FOR 7 NEW STUDIES AND WELCOMED 30 INVESTIGATORS AND COLLABORATORS, INCLUDING 6 EARLY CAREER STAGE SCIENTISTS, TO THE PROGRAM. OVER HALF OF THESE RESEARCH TEAMS IN THE 2019/2010 CLASS INCLUDE A PRINCIPAL INVESTIGATOR (PI) LEADING AN ME/CFS STUDY FOR THE FIRST TIME. RESEARCHERS IN THE 2019/2020 CLASS REPRESENT THE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL, UNIVERSITY OF UTAH, JOINT GENOME INSTITUTE AT UNIVERSITY OF CALIFORNIA BERKELEY, STANFORD UNIVERSITY, HARVARD UNIVERSITY, UNIVERSITY OF NAVARRA (SPAIN), LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE (LONDON), AND FH JOANNEUM (AUSTRIA).WITH THE GOAL OF STRENGTHENING THE GLOBAL ME/CFS RESEARCH INFRASTRUCTURE, WE SUBMITTED A NATIONAL INSTITUTES OF HEALTH (NIH) GRANT FOR A RAMSAY RESEARCHER CONFERENCE TO BE HELD IN 2020 CONVENING ALL CURRENT AND PAST RAMSAY RESEARCHERS TO SHARE RESULTS FROM THEIR WORK AND BRAINSTORM COLLABORATIVE RESEARCH PROJECTS THAT BUILD ON RAMSAY PILOT DATA. AS PART OF A GLOBAL INITIATIVE TO CREATE A LARGE AND USEFUL DATABASE FOR MEDICAL RESEARCHERS, SOLVE M.E. CONTINUED TO DEVELOP TOOLS FOR THE YOU + M.E. REGISTRY AND BIOBANK THAT WILL ENABLE PEOPLE LIVING WITH ME/CFS TO CONTRIBUTE HEALTH INFORMATION TO A RICH REPOSITORY OF DATA AVAILABLE TO RESEARCHERS AROUND THE WORLD. SELECT MEMBERS OF THE ME/CFS COMMUNITY HELPED US BETA TEST A MOBILE APPLICATION TO RECORD HEALTH INFORMATION ON AN ONGOING BASIS, AND THE TESTER FEEDBACK WAS INCORPORATED TO MAKE THE APP READY FOR THE YOU + M.E. LAUNCH. AS PART OF THE BETA TEST WE ENGAGED PATIENTS AND THEIR CAREGIVERS TO HELP DESIGN THE FINAL PLATFORM THAT INCLUDED FEATURES SUCH AS A MOBILE SYMPTOM TRACKING APP AS WELL AS THE ABILITY TO INPUT DATA VIA AN ONLINE DATA ENTRY PORTAL.TOWARDS OUR OBJECTIVE OF KEEPING OUR ME/CFS COMMUNITY UP-TO-DATE ON BREAKTHROUGHS AND DEVELOPMENTS IN MEDICAL RESEARCH, WE CONDUCTED SEVERAL WEBINARS ATTRACTING NEAR 1,000 ATTENDEES AND OPEN TO THE ME/CFS COMMUNITY AT NO COST. UPCOMING WEBINAR TOPICS INCLUDE: GENETIC PREDISPOSITION FOR IMMUNE SYSTEM, HORMONE, AND METABOLIC DYSFUNCTION IN MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME: A PILOT STUDY; ME/CFS IN THE ERA OF THE HUMAN MICROBIOME: PERSISTENT PATHOGENS DRIVE CHRONIC SYMPTOMS BY INTERFERING WITH HOST METABOLISM, GENE EXPRESSION, AND IMMUNITY; ESTIMATING PREVALENCE, DEMOGRAPHICS, AND COSTS OF ME/CFS USING LARGE SCALE MEDICAL CLAIMS DATA AND MACHINE LEARNING.OUR CHIEF SCIENTIFIC OFFICER, DR. SADIE WHITTAKER PRESENTED ON THE RAMSAY RESEARCH PROGRAM TO A ROOM FULL OF EARLY CAREER RESEARCHERS AT THE "THINKING THE FUTURE" BREAKOUT SESSION AT THE 14TH INVEST IN M.E. RESEARCH INTERNATIONAL ME/CFS CONFERENCE IN LONDON IN JUNE 2019. FINALIZED RESEARCH PLAN FOR RNAI RESEARCH PROJECT AT MEMORIAL SLOAN KETTERING CANCER CENTER.
Interesting data from their 2020 990 filing
The filing reveals the mission of the non-profit as “The solve me/cfs initiative (smci)is the leading organization focused on myalgic encephalomyelitis (me)/chronic fatigue syndrome (cfs), since being founded in 1987. smci envisions a world free of me/cfs and works steadfastly to make this disease understood, diagnosable, and treatable. smci seeks to actively engage the entire me/cfs community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding toward a cure.”.
When detailing its functions, they were listed as: “The solve me/cfs initiative (smci) is a leading organization focused on me/cfs.”.
- According to the law, the state where the non-profit operates has been reported as NC.
- The filing specifies that the non-profit's address in 2020 was 350 N GLENDALE BLVD STE B NO 368, GLENDALE, CA, 91206.
- As of 2020, the non-profit's form shows they have a total of 13 employees.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $674,805.
- The organization has 13 independent voting members.
- The organization was formed in 1987.
- The organization pays $948,058 in salary, compensation, and benefits to its employees.
- The organization pays $291,019 in fundraising expenses.