Lymphatic Education & Research Network, Inc.
Lymphatic Education & Research Network, Inc.
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About this organization
Mission
The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases, such as lymphedema (LE), lipedema (LI), and lymphatic malformation (LM), through education, research, and advocacy. With chapters throughout the world, LE&RN seeks to accelerate the prevention, treatment and cure of these diseases while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic diseases.
About
THE ACTIVITIES OF THE ORGANIZATION DURING 2019 INCLUDE THE FOLLOWING: LE&RN CONTINUED ITS REBRANDING EFFORT AND EXPANDED PROGRAMS TO MEET THE GOALS OF THE EXPANDED MISSION OF FIGHTING LYMPHATIC DISEASE AND LYMPHEDEMA THROUGH EDUCATION,RESEARCH,AND ADVOCACY. LE&RN CONTINUED THE INTERNATIONAL LYMPHATIC DISEASE AND LYMPHEDEMA REGISTRY, A NATIONAL PATIENT REGISTRY TO STIMULATE RESEARCH AND SUPPORT CLINICAL TRIALS AND DRUG DEVELOPMENT. LE&RN CONTINUED THE INTERNATIONAL LYMPHATIC DISEASE AND LYMPHEDEMA BIOREPOSITORY, PROVIDING BIOLOGICAL MATERIALS TO SERVE AS A SOURCE FOR THE CLINICAL AND LABORATORY STUDY OF LYMPHATIC DISEASES AND BEGAN SHARING DATA WITH WORLDWIDE DATABASES. LE&RN CONTINUED ITS GRANT FELLOWSHIP AWARD PROGRAM,ATTRACTING SCIENTISTS AND CLINICIANS FROM DISTINGUISHED RESEARCH CENTERS AROUND THE WORLD AND EXPANDING THE POOL OF INVESTIGATORS IN THE FIELD OF LYMPHATIC RESEARCH. LE&RN CONTINUED ITS GRANT PROGRAM THAT ALLOWS YOUNG INVESTIGATORS TO ATTEND A CONFERENCE FOCUSED ON LYMPHATIC RESEARCH. LE&RN CONTINUED ITS EDUCATIONAL AND AWARENESS OUTREACH PROGRAMS TARGETING ACADEMIA, GOVERNMENT, INDUSTRY, AND THE MEDICAL AND PATIENT COMMUNITIES. LE&RN CONTINUED ITS MONTHLY LIVE-STREAM SYMPOSIUM SERIES, WHICH BRINGS THE WORLD'S FOREMOST AUTHORITIES IN LYMPHATIC DISEASE AND LYMPHEDEMA TO PATIENTS, THEIR FAMILIES, AND PROFESSIONALS. LE&RN EXPANDED ITS WEBSITE AND SOCIAL MEDIA TO PROVIDE DAILY UPDATES AND MONTHLY NEWSLETTERS FEATURING MAJOR EVENTS IN THE FIELD. LE&RN PRODUCED SIX ISSUES OF LYMPHATIC RESEARCH AND BIOLOGY, AN INTERNATIONAL, PEER-REVIEWED BIOMEDICAL JOURNAL PROVIDING THE FORUM FOR THE EXCHANGE OF CUTTING-EDGE SCIENTIFIC DEVELOPMENTS IN LYMPHATIC SCIENCE AND MEDICINE. LE&RN SECURED ONGOING CONGRESSIONAL AND NATIONAL INSTITUTES OF HEALTH SUPPORT FOR LYMPHATIC RESEARCH. LE&RN CONTINUED THE LE&RN/LYMPHNOTES LYMPHEDEMA SCHOLARSHIP PROGRAM TO PROVIDE TUITION SUPPORT TO THERAPISTS SEEKING CERTIFICATION IN LYMPHEDEMA THERAPY. LE&RN CONTINUED A WEB-BASED "ASK THE EXPERTS" FEATURE THAT ALLOWS PATIENTS, THEIR FAMILIES, AND PROFESSIONALS TO DIRECTLY ASK QUESTIONS TO THE MOST PROMINENT AUTHORITIES IN THE FIELD. LE&RN SPOKESPERSON, ACADEMY AWARD WINNER KATHY BATES, APPEARED IN BOTH PRINT AND TELEVISION MEDIA TO SUPPORT RESEARCH. LE&RN GREW ITS HONORARY BOARD, HEADED BY KATHY BATES AND INCLUDING NOTABLE CELEBRITIES WHO SUPPORT LE&RN'S MISSION. LE&RN'S VIRTUAL EXPO WAS EXPANDED TO BETTER SERVE PATIENTS AND THERAPISTS. LE&RN AND NAVBO PREPARED FOR THE 2019 LYMPHATIC FORUM IN NASHVILLE IN MAY 2019,WHICH WAS ATTENDED BY 200 LYMPHATIC RESEARCHERS. LE&RN DEVELOPED NEW CHAPTERS IN SEVERAL STATES AND COUNTRIES. LE&RN'S ESTABLISH WORLD LYMPHEDEMA DAY ON MARCH 6 CELEBRATED ITS SECOND YEAR WITH CELEBRATIONS AND EVENTS WORLDWIDE. AN INTERACTIVE WEBSITE ALLOWS EVENTS WORLDWIDE TO BE POSTED. LE&RN HOSTED ITS FIRST WASHINGTON, DC WALK AND RALLY PRECEDED BY LEGISLATIVE VISITS BY OVER 150 ADVOCATES SEEKING INCREASED LYMPHATIC RESEARCH. LE&RN, IN PARTNERSHIP WITH THE AMERICAN SOCIETY FOR RECONSTRUCTIVE MICROSURGERY (ASRM), OFFERED A RESEARCH GRANT. LE&RN SPONSORED TRAVEL SCHOLARSHIPS AND POSTER AWARDS FOR THE 2019LYMPHATIC FORUM IN NASHVILLE, TN. LE&RN PARTNERED WITH BETH ISRAEL DEACONESS MEDICAL CENTER AND HARVARD MEDICAL SCHOOL HOSPITALS TO PRESENT THE THORD LYMPHATIC SYMPOSIUM IN NOVEMBER 2019. LE&RN AMBASSADOR CAM AYALA DELIVERED THE KEYNOTE ADDRESS. LE&RN WORKED IN PARTNERSHIP WITH THE AMERICAN BOARD OF VENOUS AND LYMPHATIC MEDICINE TO PRESENT A PANEL AT THEIR 2019 CONFERENCE IN PHOENIX. LE&RN OFFERED ITS CME FOR PHYSICIANS IN LYMPHATIC DISEASE DIAGNOSIS AND TREATMENT FOR FREE TO ALL MEMBERS OF NUMERABLE SOCIETIES TO INCLUDE THE AMERICAN SOCIETY OF BREAST SURGEONS (ASBRS) AND AMERICAN VENOUS & LYMPHATIC SOCIETY (AVLS) LE&RN'S COLLABORATION WITH STANFORD UNIVERSITY, HARVARD UNIVERSITY, UNIVERSITY OF CHICAGO, MEMORIAL SLOAN KETTERING, UNIVERSITY OF SOUTHERN CALIFORNIA, AND M.D. ANDERSON/UT HEALTH LED TO THE CREATION OF STANDARDS FOR LE&RN CENTERS OF EXCELLENCE IN LYMPHATIC MEDICINE AND THE FIRST APPLICATION PROCESS. LE&RN NATIONAL SPOKEPERSON KATHY BATES DELIVERED THE KEYNOTE ADDRESS AT THE AMERICAN SOCIETY OF BREAST SURGEONS ANNUAL CONFERENCE. LE&RN PRESENTED AT VAICON IN HYDERABAD, INDIA TO PROMOTE INVESTMENT IN PROVIDING SERVICES TO THE ESTIMATED 40 MILLION INDIANS LIVING WITH LYMPHEDEMA. LE&RN CREATED A RESEARCHERS WEBPAGE TO ASSIST THE NATIONAL INSTITUTES OF HEALTH IN IDENTIFYING AREAS OF CURRENT RESEARCH BEING PURSUED BY LYMPHATIC RESEARCHERS. LE&RN AUTHORED NEW YORK STATE BILL WENT INTO EFFECT THAT MANDATES HOSPITAL INSTITUTIONS TO PROVIDE LYMPHEDEMA MATERIALS TO ALL AT-RISK PATIENTS. LE&RN PRODUCED AND WROTE A PSA VIDEO FEATURING NATIONAL SPOKESPERSON KATHY BATES FOR THE CENTERS OF DISEASE CONTROL AND PREVENTION (CDC) CANCER-RELATED WEBSITES.
Interesting data from their 2020 990 filing
According to the filing documents, the non-profit's mission is defined as “The organization's mission is to fight lymphatic diseases and lymphedema through education, research and advocacy. the organization seeks to accelerate the prevention, treatment, and cure of lymphatic diseases while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.”.
When referring to its tasks, they were referred to as: “The organization's mission is to fight lymphatic disease and lymphedema through education, research and advocacy. the organization seeks to accelerate the prevention, treatment, and cure of lymphatic diseases while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.”.
- The non-profit's state of operation has been legally reported as NY.
- According to the latest filing, the non-profit's address in 2020 is 261 MADISON AVENUE, NEW YORK, NY, 10016.
- The total number of employees reported by the non-profit on their form for 2020 is 6.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $135,205.
- The organization has 7 independent voting members.
- The organization was formed in 1998.
- The organization pays $529,821 in salary, compensation, and benefits to its employees.
- The organization pays $85,211 in fundraising expenses.