Scleroderma Foundation Southern California Chapter
Scleroderma Foundation Southern California Chapter
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About this organization
Mission
To save lives & cure scleroderma through programs in research, support, education & research.
About
Provide patient outreach, education, support groups and services for over 800 patients affected by scleroderma in the Southern California, and build awareness of the disease. Support groups: Support groups provide a forum to share feelings, concerns, information, as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings. Support groups often feature speakers specializing in scleroderma or related topics. All support groups are free of charge and open to everyone, including patients, caregivers, family and friends. The foundation has 13 local support groups. Most groups meet bi-monthly and have an average attendance of 25-20 people. With a total served at approximately 1000+ patients, caregivers and family members. Education days: The Scleroderma Foundation hosted three education events for patients, family members and caregivers in 2018 with the total number who benefited approximately 300.
Interesting data from their 2020 990 filing
According to the filing documents, the non-profit's mission is defined as “Our mission is to save lives and cure scleroderma through programs committed to education, support & research. additionally, the southern california chapter is an affiliate of the national scleroderma foundation and contributes to its mission. support: to help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals and educational information. education: to promote public awareness and education through patient and health professional seminars, literature and publicity campaigns. research: to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.”.
When referring to its tasks, they were referred to as: “To save lives & cure scleroderma through programs in research, support, education & research.”.
- The non-profit's state of operation has been legally reported as CA.
- According to the latest filing, the non-profit's address in 2020 is 8929 S SEPULVEDA BLVD NO 412, LOS ANGELES, CA, 90045.
- The total number of employees reported by the non-profit on their form for 2020 is 4.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$30,170.
- The organization has 14 independent voting members.
- The organization was formed in 1989.
- The organization pays $221,336 in salary, compensation, and benefits to its employees.
- The organization pays $75,039 in fundraising expenses.
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