The Bleeding Disorder Foundation of Washington
The Bleeding Disorder Foundation of Washington
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About this organization
Mission
Advocate for access to care for those living with bleeding disorders. With bleeding disorders being one of the most expensive medical conditions to manage, access to care continues to be a challenge.
About
Camp I-VY: Camp I-VY is the heart of the bleeding disorder community. Each year for over 30 years, members of the bleeding disorder community have come together during the summer to learn about bleeding disorders in a 24/7 medically safe camp. Our medical services are donated by Bloodworks NW and Seattle Children's Hospital. The BDFW provides Camp I-VY programs to newly diagnosed youth and teen campers and their parents. Ages 0 to 10 are served through Camp I-VY Jr. and campers 7 to 15 are served through Camp I-VY. Campers are taught how to self-infuse their life saving medication, learn to ask questions of medical providers and build relationships with mentors from the bleeding disorder community.
Interesting data from their 2020 990 filing
The mission of the non-profit, as stated in the filing, is “The bleeding disorder foundation of washington (bdfw) empowers and advocates for people affected by the challenges of hemophilia, von willebrand disease, and other bleeding disorders, while supporting research for a cure.”.
When referring to its tasks, they were described as: “Advocate for access to care for those living with bleeding disorders. with bleeding disorders being one of the most expensive medical conditions to manage, access to care continues to be a challenge.”.
- The non-profit is operating legally in the state of WA.
- The non-profit's address for the year 2020 is listed as 9639 Firdale Avenue Ste A, Edmonds, WA, 98020 in the filing.
- The form submitted by the non-profit organization for 2020 reports 4 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $139,784.
- The CEO's salary plan within the organization is not subject to review and approval from a neutral entity.
- The organization elects its board members.
- The organization has 7 independent voting members.
- The organization was formed in 1989.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization engages in lobbying activities.
- The organization pays $226,342 in salary, compensation, and benefits to its employees.
- The organization pays $57,103 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has fundraising events.