Foundation for Ichthyosis and Related Skin Types
Foundation for Ichthyosis and Related Skin Types
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About this organization
Mission
Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.
About
First educates, inspires, and connects families and individuals affected by ichthyosis and related skin types. During 2019, First hosted seven patient support forums with 159 attendees in Pittsburgh, PA, Boise, ID, Salt Lake City, UT, Toronto, ON, Austin, TX, Orlando, FL and Charleston, SC. First also provided critical information to its members and the general public through its website and calls to its knowledgeable staff. First also is active on social media and facilitates several Facebook group discussions. Providing accurate, non-biased information on the latest in research, diagnosis, and management of ichthyosis and related skin types, First provides critical support to those affected with these genetic conditions and those that care about them.
Interesting data from their 2020 990 filing
From their filing, the objective of the non-profit is stated as “To improve lives and seek cures for those affected by ichthyosis and related skin types.”.
When talking about its functions, they were outlined as: “To improve lives and seek cures for those affected by ichthyosis and related skin types.”.
- The legally reported state of operation for the non-profit is CA.
- According to the filing, the non-profit's address in 2020 is 2616 N BROAD ST, COLMAR, PA, 189159423.
- The non-profit organization as of 2020 has a total of 6 employees reported on their form.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $74,955.
- The organization has 14 independent voting members.
- The organization was formed in 1981.
- The organization pays $231,927 in salary, compensation, and benefits to its employees.
- The organization pays $45,268 in fundraising expenses.
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