Spondylitis Association Of America
Spondylitis Association Of America
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About this organization
Mission
To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.
About
EDUCATION AND AWARENESS - PATIENT CONFERENCES, SEMINARS, AND SUPPORT-THE ORGANIZATION SPONSORED PATIENT EDUCATION AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE LOCATED AT SPONDYLITIS.ORG SERVES MORE THAN 500,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. PATIENT EDUCATION SEMINARS-PATIENT EDUCATION SEMINARS WERE HELD IN CHICAGO AND NEW YORK WITH LIVESTREAMING AVAILABLE AND WEBINARS RECORDED FOR FUTURE USE THROUGH THE WEBSITE. THIS AS LIFE LIVE (TASLL)- DAN REYNOLDS AND NOVARTIS PHARMACEUTICALS HAVE PARTNERED WITH THE ORGANIZATION TO BRING AN INTERACTIVE ONLINE TALK SHOW VIDEO SERIES, THIS AS LIFE LIVE (TASLL), TO LIFE. THE ORGANIZATION PROVIDES GUIDANCE ON THE PROJECT, SUGGESTS INTERVIEWEES, ATTENDS THE VIDEO SHOOTS, AND ENSURES ACCURACY OF SPA INFORMATION RECORDED AND SHARED. A TOTAL OF FIVE EPISODES WERE RELEASED DURING THE YEAR ENDED JUNE 30, 2019 AND A TOTAL OF 16 EPISODES HAVE BEEN RELEASED SINCE THE PROJECT LAUNCHED AT THE BEGINNING OF 2016.LIFE IMPACT SURVEY- A SURVEY WAS CONDUCTED WITH PATIENTS TO IDENTIFY THE PROPORTION OF PATIENTS WITH DELAYED DIAGNOSIS, REASONS, AND TREATMENT.SPONDYLITIS PLUS-MEMBERS OF THE SPONDYLITIS ASSOCIATION OF AMERICA RECEIVE A COPY OF THE ORGANIZATION'S PRINT PUBLICATION SPONDYLITIS PLUS FREE OF CHARGE, ON A QUARTERLY BASIS. MORE THAN 5,000 COPIES ARE DISTRIBUTED QUARTERLY.ESUN- MORE THAN 30,000 PEOPLE ARE SUBSCRIBED TO AND RECEIVE THE ORGANIZATION'S MONTHLY SPONDYLITIS EDUCATION AND AWARENESS E-NEWSLETTER.
Interesting data from their 2019 990 filing
The non-profit's mission, as documented in the filing, is “Advancing and directly sponsoring axial spondyloarthritis research, accelerating diagnosis, supporting optimum treatment for the individual, advancing awareness, and public and health care professional education in axial spondyloarthritis.”.
When explaining its purpose, the activities were described as: “Advancing research, accelerated diagnosis, optimum treatment, public awareness and health care professional education in spondyloarthritis”.
- The non-profit is legally allowed to operate in the state of CA, as reported.
- The filing provides the non-profit's address in 2019 as 16360 ROSCOE BLVD NO 100, VAN NUYS, CA, 91406.
- The non-profit has a total of 13 employees, as reported on their form for 2019.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$76,950.
- The organization has 11 independent voting members.
- The organization was formed in 1983.
- The organization pays $1,099,229 in salary, compensation, and benefits to its employees.
- The organization pays $97,371 in fundraising expenses.
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