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Suneel Research Foundation

Suneel Research Foundation

Amherst, NY 14228
Tax ID03-0436723

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About this organization

Revenue

$37,103

Expenses

$49,317

Website

suneelslight.org

Mission

The foundation raises money to foster and advance medical and scientific research to find a cure for Duchenne's Muscular Dystrophy. In addition, the foundation seeks to prevent and alleviate suffering & promote education & awareness of Duchenne's Muscular Dystrophy.

About

The foundation funds research activities to find a cure for Duchenne's Muscular Dystrophy (DMD). Currently there are a number of clinical trials underway for drugs developed to treat various aspects of DMD. In September 2016, Sarepta Therapeutics, won FDA approval for the use of its drug Exondys 51 for the treatment of DMD patients that have a confirmed mutation of the dystrophin gene amenable to exon 51 skipping. In December 2019, Sarepta, won FDA approval for its new drug Vyondys 53 for the treatment of patients that have a confirmed mutation of the dystrophin gene connected to exon 53 skipping. Both treatments help approximately 21% of the patients afflicted with DMD.

Interesting data from their 2020 990 filing

The purpose of the non-profit is listed in the filing as “The foundation raises money to foster and advance medical and scientific research to find a cure for duchenne's muscular dystrophy. in addition, the foundation seeks to prevent and alleviate suffering & promote education & awareness of duchenne's muscular dystrophy.”.

When discussing its operations, they were characterized as: “The foundation raises money to foster and advance medical and scientific research to find a cure for duchenne's muscular dystrophy. in addition, the foundation seeks to prevent and alleviate suffering & promote education & awareness of duchenne's muscular dystrophy.”.

  • The non-profit's legally reported state of operation is NY.
  • The filing states that the non-profit's address in the year 2020 is 275 NORTHPOINTE, BUFFALO, NY, 14228.
  • The form submitted by the non-profit for 2020 shows a total of 2 employees.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are less than $100,000.
  • Revenue is less than $100,000.
  • Revenue less expenses is -$12,214.
  • The CEO's remuneration policy within the organization is not determined through a review and approval process by a neutral source.
  • The organization has 17 independent voting members.
  • The organization was formed in 2002.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule O.
  • The organization pays $11,035 in salary, compensation, and benefits to its employees.
  • The organization pays $23,674 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization pays grants to individuals.
  • The organization has minutes of its meetings.
  • The organization has fundraising events.
  • The organization has grants to organizations.

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