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Cooley's Anemia Foundation, Inc.

Cooley's Anemia Foundation, Inc.

New York, NY 10001
Tax ID11-1971539

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About this organization

Revenue

$2,248,215

Expenses

$2,099,709

Website

thalassemia.org

Mission

The mission of Cooley's Anemia Foundation is to increase life expectancy and enhance the quality of life for those impacted by thalassemia, a class of genetic blood disorders, most of which require regular blood transfusions and aggressive management of chronic iron overload, the predominant cause of early death. We do so by funding medical research to advance treatment and curative approaches, by supporting and advising patients and their families and advocating on their behalf, and by educating medical professionals and the general public. Every day, we strive for longer and healthier lives for all patients with thalassemia until a universal cure is found.

About

Research grants - payments for medical research to enhance knowledge in treatment and eventual cure.

Interesting data from their 2020 990 filing

The filing sets forth the mission of the non-profit as “To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.”.

When detailing its responsibilities, they were listed as: “To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.”.

  • The state in which the non-profit is legally permitted to operate is NY.
  • The address of the non-profit for 2020 according to the filing is 330 SEVENTH AVENUE SUITE 200, NEW YORK, NY, 10001.
  • The number of employees reported by the non-profit on their form as of 2020 is 10.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are greater than $1,000,000.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is $148,506.
  • The CEO compensation structure within the organization is based on a review and approval from a neutral party.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has 47 independent voting members.
  • The organization was formed in 1954.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule J.
  • The organization is required to file Schedule O.
  • The organization engages in lobbying activities.
  • The organization pays $880,774 in salary, compensation, and benefits to its employees.
  • The organization pays $293,656 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.

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