Child Life Society Inc.
Child Life Society Inc.
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About this organization
Mission
Child Life Society improves the quality of life of individuals living with cystic fibrosis (CF) and other genetic lung diseases, helping them breathe easier, be healthier and live longer. We do this by providing family respite trips, CF counseling, information and referrals, assistance improving access to and affordability of CF medicine, equipment, therapies, and treatments.
About
4A.Lifeshine Respite: Child Life Society (CLS) provides respite trips at no cost to children with CF and their families. We have observed that sending families for respite in locations not designed for our individuals with CF led to a variety of unnecessary stressors and health risks for the children and families. CLS launched a multi-year campaign to build specially-designed facilities in which families of children with CF would be able to enjoy safer, less stress respite. We have successfully funded and built two (2) respite homes to-date, with the goal of three (3) more within ten (10) years to meet the increasing demand for services. In 2017, the two Lifeshine respite homes provided 10 therapeutic respite trips to 16 children with CF and their families (69 total individuals) at no cost to the family. Trips include as needed, ground transportation, airfare, accommodation, food and other expenses. Requests for services continue to increase and increasingly strain the capacity of the organization to respond. Total cost of the Lifeshine respite program was 105,399, including grants of 26,598.
Interesting data from their 2018 990 filing
The non-profit's mission, as documented in the filing, is “Child life society improves the quality of life of individuals living with cystic fibrosis (cf) and other life-threatening and life-shortening genetic lung diseases. our signature program, the lifeshine respite in key west, fl, helps families with sick children experience the remarkable benefits of the unique climate with heavily salinated ocean air in specially designed and maintained facilities for individuals with cf. other core services include: counseling, information and referrals, assistance improving access to and affordability of cf medicine, equipment, therapies, and treatments, and assistance maintaining healthier home environments to help families navigate the complex requirements and unique challenges of raising healthier children with cf. in a typical year, 90 families with children suffering life-threatening and life-shortening impacts of cystic fibrosis benefit from an array of services through the incredible generosity of child life society contributors.”.
When explaining its purpose, the activities were described as: “Child life society improves the quality of life of individuals living with cystic fibrosis (cf) and other genetic lung diseases, helping them breathe easier, be healthier and live longer. we do this by providing family respite trips, cf counseling, information and referrals, assistance improving access to and affordability of cf medicine, equipment, therapies, and treatments.”.
- The filing provides the non-profit's address in 2018 as 1347 43RD STREET, BROOKLYN, NY, 11219.
- The non-profit has a total of 1 employees, as reported on their form for 2018.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $78,351.
- The CEO remuneration policy within the organization is not established through a review and endorsement from a neutral party.
- The organization has 3 independent voting members.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $57,059 in salary, compensation, and benefits to its employees.
- The organization pays $41,180 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has fundraising events.
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