Hereditary Neuropathy Foundation Inc
Hereditary Neuropathy Foundation Inc
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About this organization
Mission
Hnf, Inc., a non-profit dedicated to supporting projects through the therapeutic research in accelerated discovery (TRIAD) program, a collaborative effort with academia, government and industry, to develop treatments for CMT. Currently TRIAD involves many groups that span the drug discovery, drug development, and diagnostics continuum. Education and support of the CMT community to improve quality of life is also a key component of HNF's mission.
About
Therapeutic research in accelerated discovery (TRIAD) - HNF has been a leader in collaborating with industry on clinical trial development. The reported results of the drug PXT3003, the first pivotal phase III clinical trial to treat CMT1A shows promise. Other industry stakeholders partner with HNF in helping to develop clinical trial protocols, regulatory involvement, improved clinical and patient reported outcome measures and endpoints for clinical trials and for the recruitment of patients through HNF's patient registry, global registry for inherited neuropathies (GRIN). HNFS GRIN proprietary platform collects natural history and longitudinal studies for Charcot-Marie-Tooth (CMT) and other inherited neuropathies (IN). As part of the TRIAD program, HNF continues to collaborate on preclinical studies (both novel drug compounds and gene therapy approaches) with researchers and industry to translate potential therapies for CMT.
Interesting data from their 2020 990 filing
In the filing, the mission of the non-profit is noted as “Hnf, inc., a non-profit dedicated to supporting projects through the therapeutic research in accelerated discovery (triad)program, a collaborative effort with academia, government and industry, to develop treatments for cmt. currently triad involves many groups that span the drug discovery, drug development, and diagnostics continuum. education and support of the cmt community to improve quality of life is also a key component of hnf's mission.”.
When referring to its responsibilities, they were outlined as: “Hnf, inc., a non-profit dedicated to supporting projects through the therapeutic research in accelerated discovery (triad) program, a collaborative effort with academia, government and industry, to develop treatments for cmt.”.
- The state in which the non-profit is legally registered to operate is NY, as per legal records.
- The filing documents the non-profit's address in 2020 as 401 PARK AVENUE SOUTH 10TH FLOOR, NEW YORK, NY, 10016.
- According to the non-profit's form, they have 1 employees on their payroll as of 2020.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $87,842.
- The organization has 11 independent voting members.
- The organization was formed in 2001.
- The organization pays $101,289 in salary, compensation, and benefits to its employees.
- The organization pays $25,378 in fundraising expenses.
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