Hope for Javier
Hope for Javier
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About this organization
Mission
Hope for Javier's mission is to create hope where none (yet) exists. Because Duchenne is considered an orphan disease, one that pharmaceutical companies consider least profitable and therefore not worthy of their attention, it is up to private individuals to fund much of the research. Through fundraising and raising awareness, Hope for Javier is changing the outcome for boys diagnosed with this devastating disease in two ways: by funding translational research that focuses on moving science from the lab into human clinical trials, and by funding initiatives that make improvements to the standard of care, the quality of life, and the general outlook for all those diagnosed.
About
Charitable donation to the curators of the University of Missouri for a fellowship grant for research into developing a xenograph model for testing potential therapies for Duchenne.
Interesting data from their 2020 990 filing
The purpose of the non-profit is outlined in the filing as “Hope for javier's mission is to create hope where none (yet) exists. because duchenne is considered an orphan disease, one that pharmaceutical companies consider least profitable and therefore not worthy of their attention, it is up to private individuals to fund much of the research. through fundraising and raising awareness, hope for javier is changing the outcome for boys diagnosed with this devastating disease in two ways:by funding translational research that focuses on moving science from the lab into human clinical trials.by funding initiatives that make improvements to the standard of care, the quality of life and the general outlook for all those diagnosed.”.
When discussing its operations, they were defined as: “Hope for javier's mission is to create hope where none (yet) exists. because duchenne is considered an orphan disease, one that pharmaceutical companies consider least profitable and therefore not worthy of their attention, it is up to private individuals to fund much of the research. through fundraising and raising awareness, hope for javier is changing the outcome for boys diagnosed with this devastating disease in two ways:by funding translational research that focuses on moving science from the lab into human clinical trials.by funding initiatives that make improvements to the standard of care, the quality of life and the general outlook for all those diagnosed.”.
- The state where the non-profit operates has been legally reported as NY.
- The filing indicates that the non-profit's address in 2020 is located at 10 BEECH LANE, STONY BROOK, NY, 11790.
- The non-profit has reported 0 employees on their form as of 2020.
- Is not a private foundation.
- Expenses are less than $100,000.
- Revenue is less than $100,000.
- Revenue less expenses is $50,420.
- The organization has 0 independent voting members.
- The organization was formed in 2008.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
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