Castleman Disease Collaborative Network (Cdcn)
Castleman Disease Collaborative Network (Cdcn)
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About this organization
Mission
Our mission is to accelerate Castleman disease research, treatment, and patient care through global collaboration, strategic investments in research, and supportive resources for patients and their loved ones. Thousands of patients suffer from one of the debilitating forms of the mysterious and terminal Castleman disease (CD). Our focus is on bringing together all those who are working to save and extend the lives of these patients. Learn more on our website at www.cdcn.org
About
IN 2017, COMMUNITY CONTRIBUTIONS, LARGE GRANTS, AND FUNDRAISER PROCEEDS WERE RECEIVED AND USED TO HELP FUND A CASTLEMAN'S DISEASE EDUCATIONAL CONFERENCE HELD IN DECEMBER 2017 IN ATLANTA, GEORGIA. THE CDCN (CASTLEMAN'S DISEASE COLLABORATIVE NETWORK) HELD THE "ACCELERATING RESEARCH & TREATMENTS FOR CASTLEMAN'S DISEASE" CONFERENCE WHERE A DIVERSE GROUP OF HEMATOLOGISTS, PATHOLOGISTS, PHYSICIAN-SCIENTISTS, TRANSLATIONAL RESEARCHERS AND PHARMACEUTICAL PARTNERS ATTENDED. THE MEETING FOCUSED ON THE GAPS THAT EXIST IN THE CURRENT STATE OF KNOWLEDGE REGARDING THE DISEASE, DIAGNOSTIC CRITERIA AND RECENTLY APPROVED TREATMENT OPTIONS. THIS WAS THE FIFTH ANNUAL CONFERENCE. FUNDS WERE EXPENDED FOR FACILITY RENTAL, TRAVEL, LODGING, MEALS AND OTHER RELATED EXPENSES.THE FUNDS WERE ALSO USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN NOVEMBER 2017 IN PHILADELPHIA, PENNSYLVANIA FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR FACILITY RENTAL, TRAVEL, LODGING, MEALS, PATIENT ENTERTAINMENT, PROMOTION, PATIENT LITERATURE AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2017, CASH CONTRIBUTIONS TOTALING $291,012 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2017, CASH EXPENDITURES OF $34,996 WERE MADE TO VARIOUS RESEARCH FACILITIES FOR THE PURPOSE OF CONDUCTING TISSUE SAMPLE STUDIES. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2018, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.
Interesting data from their 2018 990 filing
The filing documents outline the non-profit's mission as “To develop awareness of castleman's disease and to raise money to fund education and laboratory research to determine cause, treatment and ultimate cure.”.
When outlining the tasks it performs, they were referred to as: “To develop awareness of castleman's disease and to raise money to fund education and laboratory research to determine cause, treatment and ultimate cure.”.
- The non-profit's reported state of operation is CA as per legal requirements.
- The filing reveals that the address of the non-profit in 2018 is 1036 PAR AVENUE, PASO ROBLES, CA, 93446.
- As of 2018, the non-profit has 0 employees reported on their 990 form.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $233,610.
- The CEO compensation policy of the organization is not established through an independent review and approval process.
- The organization has 0 independent voting members.
- The organization was formed in 2005.
- The organization is required to file Schedule B.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
- The organization has fundraising events.
- The organization has grants to organizations.