Wylder Nation Foundation
Wylder Nation Foundation
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About this organization
Mission
Wylder Nation Foundation is determined to improve the lives of children diagnosed with lysosomal storage disorders and provide hope by accelerating the discovery and development of treatment options.
About
Funded investigator initiated ind for treatment using a small molecule for a Niemann-Pick type a NPA child based on new discoveries/understanding of the brain pathology of the disease. Began expanding our therapeutic development capabilities by establishing a colony of Niemann-Pick type a animal models to test and validate new treatment options. Hosted multiple meetings with scientific researchers and potential drug development partners. Started search for bio-repository partner, finished funding our portion of gene therapy studies for NPA, and continued final year of funding for pre-doctoral fellow. Received award recognition from major biotech company for excellence in advocacy for lysosomal storage diseases.
Interesting data from their 2019 990 filing
The filing specifies the mission of the non-profit as “Wylder nation foundation is determined to improve the lives of children diagnosed with lysosomal storage disorders and provide hope by accelerating the discovery and development of treatment options.”.
When explaining its duties, they were described as: “Wylder nation foundation is determined to improve the lives of children diagnosed with lysosomal storage disorders and provide hope by accelerating the discovery and development of treatment options.”.
- The state in which the non-profit is authorized to operate legally is AZ.
- According to the filing, the address of the non-profit for the year 2019 is 8924 E Pinnacle Peak Rd G5-574, Scottsdale, AZ, 85255.
- The non-profit has reported 1 employees on their form for the year 2019.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Has foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is -$127,061.
- The CEO compensation strategy within the organization is determined through a thorough evaluation and endorsement by an independent source.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 2 independent voting members.
- The organization was formed in 2013.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $53,287 in salary, compensation, and benefits to its employees.
- The organization pays $15,484 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.