Sofia Sees Hope Inc.
Sofia Sees Hope Inc.
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About this organization
Mission
Sofia Sees Hope is a 501c(3) nonprofit patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by rare inherited retinal diseases. Our mission is to generate awareness, raise funds for research, and provide outreach, support and education to those affected by LCA and other rare retinal diseases.
About
Generate awareness and funds to fund research, diagnosis, and opportunities to help families impacted by the genetic disorder that causes blindness, Leber's congenital amaurosis (LCA).
Interesting data from their 2020 990 filing
The non-profit's mission is outlined in the filing as being “Sofia sees hope is a 501c(3) nonprofit patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by rare inherited retinal diseases. our mission is to generate awareness, raise funds for research, and provide outreach, support and education to those affected by lca and other rare retinal diseases.”.
When outlining its responsibilities, they were referred to as: “Sofia sees hope is a 501c(3) nonprofit patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by rare inherited retinal diseases. our mission is to generate awareness, raise funds for research, and provide outreach, support and education to those affected by lca and other rare retinal diseases.”.
- The filing reveals the non-profit's address in 2020 to be SAME AS ABOVE, LEDYARD, CT, 06339.
- As per the non-profit's form for 2020, they have 0 employees on their payroll.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$12,550.
- The CEO compensation scheme within the organization is not based on a review and endorsement by an impartial party.
- The organization has 12 independent voting members.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $2,877 in fundraising expenses.
- The organization has minutes of its meetings.
- The organization has fundraising events.
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