Answer Als
Answer Als
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About this organization
Mission
Our mission is to build the most comprehensive clinical, genetic, molecular & biochemical assessment of ALS, while openly sharing the results with the global research community to help bring an end to ALS.
About
Creating the largest and most comprehensive foundation of ALS data ever amassed, encompassing clinical, chemical, genetic, protein, historical and biological data from an enormous sampling of ALS patients in the United States. In collaboration with machine learning and big data technology, the data will be mined to uncover ALS causes, subtypes, pathways gone awry and drug targets. This will establish a large and critical foundation for new clinical trials, develop new ways to categorize patients to identify specific druggable pathways and subtype biomarkers and disease pathophysiology to aid not only in early diagnosis of the disease, but also to monitor the efficacy of newly developed treatments.
Interesting data from their 2020 990 filing
The filing clearly states the mission of the non-profit as “To find solutions for people living with als now and for the future by utilizing knowledge of patients, leading researchers and technology to seek immediate solutions to improve the lives of those living with als until a treatment or cure is found; discover what causes als; develop models to understand als and screen for drug and cellular therapy; discover therapies that could substantially slow or halt the progress of als and ultimately cure the disease; provide all gathered information free for worldwide use by clinicians, scientists and pharma to rapidly advance therapeutics.”.
When detailing its duties, they were outlined as: “To find solutions for people living with als now and for the future by utilizing knowledge of patients, leading researchers and technology to seek immediate solutions to improve the lives of those living with als until a treatment or cure is found; discover what causes als; develop models to understand als and screen for drug and cellular therapy; discover therapies that could substantially slow or halt the progress of als and ultimately cure the disease; provide all gathered information free for worldwide use by clinicians, scientists and pharma to rapidly advance therapeutics.”.
- In compliance with legal regulations, the non-profit has reported their state of operation as LA.
- The filing records the non-profit's address for 2020 as ONE GALLERIA BLVD NO 1100, METAIRIE, LA, 70001.
- The non-profit's form for the year 2020 reports a total of 0 employees on their payroll.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $6,749,100.
- The organization has 10 independent voting members.
- The organization was formed in 2014.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $45,668 in fundraising expenses.
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