International Fop Association, Inc.
International Fop Association, Inc.
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About this organization
Mission
To fund research to find a cure for fop while supporting, connecting and advocating for individuals and their families, and raising awareness worldwide.
About
See schedule omedical research: a significant part of our mission is to fund the research conducted at the fop laboratory located at the university of pennsylvania school of medicine. This vital research provides hope to those living with fop, and is essential to finding a treatment and ultimately a cure. It reassures those with fop that they are not alone in their fight against this rare medical condition and that there is a team of highly trained, devoted scientists working diligently every day to find a cure for fop. The information obtained from studing this disease will have far-reaching implications for the treatment of common disorders such as fractures, osteoporosis, hip replacement surgery, and other forms of heterotopic ossification bone formation that occur in trauma and burn victims. The ifopa, along with other partners, funds critical work being done at the fop lab which has allowed it to expand the horizons of fop research well beyond the physical boundaries of a single geographic location into a true international co-laboratory. The fop collaborates with many prestigious academic institutions worldwide.
Interesting data from their 2020 990 filing
The non-profit's mission, as described in the filing, is “The ifopa's mission is to fund research to find a cure for fibrodysplasia ossificans progressiva (fop) while supporting individuals and their families through education, public awareness, and advocacy.”.
When describing its duties, they were characterized as: “The ifopa's mission is to fund research to find a cure for fibrodysplasia ossificans progressiva (fop) while supporting individuals and their families through education, public awareness, and advocacy.”.
- The non-profit has complied with legal regulations by reporting their state of operation as MO.
- The filing shows that the non-profit's address as of 2020 is 1520 CLAY ST STE H2, NORTH KANSAS CITY, MO, 64116.
- As of 2020, the non-profit has reported a total of 4 employees on their form.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $1,130,003.
- The organization has 14 independent voting members.
- The organization was formed in 1988.
- The organization pays $474,609 in salary, compensation, and benefits to its employees.
- The organization pays $106,704 in fundraising expenses.
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