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Musella Foundation for Brain Tumor Research & Information, Inc.

Musella Foundation for Brain Tumor Research & Information, Inc.

Hewlett, NY 11557
Tax ID13-3938057

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About this organization

Revenue

$1,167,422

Expenses

$1,222,314

Website

virtualtrials.com

Mission

Brain tumors are now the leading cause of cancer deaths of children and young adults. The emotional and financial devastation it causes to families is unacceptable. The cure will eventually be found. We intend to speed up the process by speeding up the exchange of information - networking with the researchers, patient groups, and other nonprofits; raising money for research; advocating for change; hosting conferences and running research projects. Until that happens, we will help support families dealing with brain tumors by educating them on the choices they have to make, help find options for them, and even help them get access to the treatments they need with both our advocacy program and our copayment assistance program.

About

The organization raises money and awards grants for brain tumor research. They seek out the most innovative and important projects to fund. Some of the projects have already made an impact on this disease. The organization meets these goals via the website, www.virtualtrials.com, online support groups, email, and a toll-free patient help phone line. The organization finds treatment options, matches them to clinical trials, and educates them about the disease. The organization's website is one of the most comprehensive resources available for brain tumor patients to learn about the disease. The organization has also partnered with Google to provide brain tumor information through google.com.

Interesting data from their 2019 990 filing

The filing specifies the mission of the non-profit as “To improve the quality of life and survival times for brain tumor patients by using computer technlogy to streamline the flow of information, organize the brain tumor community and raise money for brain tumor research. the organization also runs a copayment assistance program for malignant brain tumor patients, which helps the patients pay for the high cost of treatment.”.

When explaining its duties, they were described as: “To improve the quality of life and survival times for brain tumor patients by using computer technlogy to streamline the flow of information, organize the brain tumor community and raise money for brain tumor research. the organization also runs a copayment assistance program for malignant brain tumor patients, which helps the patients pay for the high cost of treatment.”.

  • The state in which the non-profit is authorized to operate legally is NY.
  • According to the filing, the address of the non-profit for the year 2019 is 1100 PENINSULA BLVD, HEWLETT, NY, 11557.
  • The non-profit has reported 1 employees on their form for the year 2019.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor advised fund.
  • Is not a private foundation.
  • Expenses are greater than $1,000,000.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is -$54,892.
  • The CEO compensation strategy within the organization is determined through a thorough evaluation and endorsement by an independent source.
  • The organization has 17 independent voting members.
  • The organization was formed in 1998.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule J.
  • The organization is required to file Schedule O.
  • The organization pays $230,447 in salary, compensation, and benefits to its employees.
  • The organization pays $32,774 in fundraising expenses.
  • The organization has minutes of its meetings.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.

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