Hunters Hope Foundation, Inc.
Hunters Hope Foundation, Inc.
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About this organization
Mission
Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold: • To broaden public awareness of Krabbe Disease & other Leukodystrophies thus increasing the probability of early detection &treatment. • To gather and provide current, functional information and service linkages to families of children with Leukodystrophies. • To fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies. • To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support of family members and those afflicted with Leukodystrophies. Among the essential goals, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for these precious gifts of life. These bedrock values are categorically and vigilantly expressed throughout all of the Foundation's programs and activities. Hunter's Hope is a not-for-profit with tax-exempt 501c(3) status and is registered as a charitable organization in New York State.
About
EDUCATION & AWARENESS - THE FOUNDATION STRIVES TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.
Interesting data from their 2020 990 filing
The non-profit's mission, as described in the filing, is “Hunter's hope foundation was established to address the acute need for information and research with respect to krabbe disease and related leukodystrophies. in addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust, and cope with the demands of the fatal illnesses. accordingly our mission is four fold:- to broaden public awareness of krabbe disease and other leukodystrophies thus increasing the probability of early detection and treatment.- to gather and provide current, functional information, and service linkages to families of children with leukodystrophies.- to fund research efforts that will identify new treatments, therapies, and ultimately, a cure for krabbe disease and other leukodystrophies.- to establish an alliance of hope that will nourish, affirm, and confront the urgent need for medical, financial, and emotional support of family members and those afflicted with leukodystrophies.”.
When describing its duties, they were characterized as: “To increase public awareness, to support, to fund research efforts to find a cure for krabbe disease and other leukodystrophies, and to promote family values to parents all over the world.”.
- The non-profit has complied with legal regulations by reporting their state of operation as NY.
- The filing shows that the non-profit's address as of 2020 is 21 PRINCETON PLACE SUITE 12, ORCHARD PARK, NY, 14127.
- As of 2020, the non-profit has reported a total of 5 employees on their form.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$1,036.
- The organization has 10 independent voting members.
- The organization was formed in 1998.
- The organization pays $274,263 in salary, compensation, and benefits to its employees.
- The organization pays $60,511 in fundraising expenses.
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