Hairy Cell Leukemia Foundation
Hairy Cell Leukemia Foundation
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About this organization
Mission
The Hairy Cell Leukemia Foundation has the mission to improve outcomes for patients with hairy cell leukemia through research, by advancing knowledge about HCL among oncologists and hematologists, and by providing educational resources and comfort to patients and their families.
About
Grant to the Ohio State University for the deployment and management of the Hairy Cell Leukemia Patient Data Registry. The Registry will aggregate the clinical data of a small and geographically diverse patient population. This Registry will help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of hairy cell leukemia and design clinical trials for new therapies. In 2019, a grant was issued to The Ohio State University to support the continued deployment of the Registry.
Interesting data from their 2020 990 filing
The non-profit's aim, as stated in the filing, is “The hairy cell leukemia foundation is dedicated to improving outcomes for patients by advancing research into the causes and treatment of hairy cell leukemia, as well as by providing educational resources and comfort to all those affected by hairy cell leukemia.”.
When referring to its actions, they were outlined as: “Dedication to improving outcomes for patients by advancing research into the causes and treatment of hairy cell leukemia, as well as educational resources and comfort.”.
- The non-profit has complied with legal obligations by reporting their state of operation as IL.
- The non-profit's address in 2020 is noted in the filing as 85 Broad St 28th Fl, New York, NY, 10004.
- The non-profit's form for 2020 reports a total of 1 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Has foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $272,541.
- The salary policy for the CEO of the organization is established through a review and approval by an impartial party.
- The organization has 9 independent voting members.
- The organization was formed in 1984.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $116,302 in salary, compensation, and benefits to its employees.
- The organization pays $23,516 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.
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